Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
PERT Shortages Survey
We know how stressful the ongoing PERT shortages are for those affected by neuroendocrine cancer (NET & NEC), pancreatic cancer (PDAC), pancreatitis, and cystic fibrosis. As charities, we are committed to monitoring the situation and sustaining pressure for this...
Breakthrough Research Paves Way for Personalised Treatment in Lung Neuroendocrine Cancer
Discover how breakthrough lung research from Dr Jules Derks and Maastricht University is advancing personalised treatment for Lung Neuroendocrine Tumours (Lung NETs), offering new hope through a simple tool that could transform targeted therapies.
Neuroendocrine Cancer in the Daily Express – ‘I had no idea I was dying – and then I found out on the NHS app’
We are delighted to support the Daily Express Cancer Care campaign ensuring that all cancer patients get access to mental health support both during and after their treatment. Neuroendocrine Cancer UK have had their 3rd article in support of this campaign...