Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Understanding Neuroendocrine Carcinomas: Key Facts and Awareness
We are committed to increasing awareness of neuroendocrine cancers and educating our community about these rare and often misunderstood malignancies. It is essential to recognise that Neuroendocrine Cancers, also known as Neuroendocrine Neoplasms, encompass two...
Unveiling the Hidden Battles: Dr. Paul Coffey’s Book Sheds Light on Neuroendocrine Cancer
Introduction: Welcome to Neuroendocrine Cancer UK, where we strive to make a difference in the lives of those affected by neuroendocrine cancers. Today, we share an insightful excerpt from the late Dr. Paul Coffey's book, "The Only Book I'll Ever Write - When a...
Embracing New Roles: Life After a Cancer Diagnosis
Simon, a former educator, shares his journey of finding a new purpose in life after being diagnosed with cancer. Forced to retire from work, he sought opportunities to use his skills and make a difference in his local community. Simon became involved in various roles,...