Welcome to Neuroendocrine Cancer UK, where we strive to make a difference in the lives of those affected by neuroendocrine cancers. Today, we share an insightful excerpt from the late Dr. Paul Coffey’s book, “The Only Book I’ll Ever Write – When a Doctor Becomes the Patient.” Dr. Coffey sheds light on the unique challenges faced by patients, offering invaluable perspectives and highlighting the need for improved care. In this post, we invite you to join us in our campaign for an “ideal patient care pathway” and learn how you can contribute to this vital cause.
The Royal Free NET lead spoke very impressively and showed their very well-worked outpatient pathway and explained how they try to ensure patients get the information and services needed for optimal care. I came away from the conference feeling that although, as a rare cancer, neuroendocrine cancers, NECs, and NETs, get far less funding than required, nevertheless there is a determination among some very impressive people to raise standards of care throughout the world.
Creating an Outpatient Pathway for Optimal Care:
Dr. Coffey’s excerpt emphasises the exceptional efforts of the Royal Free NET lead in developing an outpatient pathway dedicated to providing the best possible care for neuroendocrine cancer patients. This pathway aims to address the specific needs of NEC patients and ensure they receive timely and appropriate treatment. Despite the existing funding gap for NECs and neuroendocrine tumours (NETs), Neuroendocrine Cancer UK is committed to raising the standards of care for these individuals. We firmly believe that implementing a dedicated pathway within NHS England is the key to achieving this goal.
Join the Campaign:
We invite you to stand with us in support of this crucial campaign for an improved patient care pathway. By joining forces, we can make a lasting impact on the lives of neuroendocrine cancer patients. Together, we can strive to raise awareness, improve research, and advocate for the implementation of a specialised pathway that caters to the unique needs of patients.
How You Can Help:
1. Visit our campaign page: Explore our recently launched campaign page at www.neuroendocrinecancer.org.uk/campaigns/nc-pathway/. Gain valuable insights into the campaign, learn about the experiences of neuroendocrine cancer patients, and discover how you can contribute to this cause.
2. Spread the word: Share this campaign with your friends, family, and colleagues. Help us raise awareness about the challenges faced by neuroendocrine cancer patients and the importance of implementing an “ideal patient care pathway.”
Support Dr. Coffey’s Book:
In addition to our campaign efforts, we offer you a unique opportunity to support the cause while gaining valuable insights. When you purchase Dr. Paul Coffey’s book, “The Only Book I’ll Ever Write – When a Doctor Becomes the Patient,” through Amazon, all proceeds directly benefit Neuroendocrine Cancer UK. By delving into the patient’s perspective, you not only gain valuable knowledge but also contribute to the ongoing fight against neuroendocrine cancers.
Let’s join hands and work towards improving the lives of neuroendocrine cancer patients. By supporting the campaign for an improved patient care pathway, spreading awareness, and engaging in impactful initiatives, we can make a lasting difference. Together, we can raise standards of care, support research efforts, and create a brighter future for those affected by neuroendocrine cancers. Join the campaign today and be a part of the movement!