Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Makara Health names Neuroendocrine Cancer UK as one of their charities of the year
Makara Health names Neuroendocrine Cancer UK as one of their charities of the year, and we are so thrilled and honoured. Thank you, Makara Health Communications. “Makara Health is proud to be supporting Neuroendocrine Cancer UK as a nominated charity for 2023....
Liver transplantation and Neuroendocrine Tumours: advancing care
Liver transplantation for cancer is evolving, offering new opportunities for selected patients diagnosed with Neuroendocrine Cancer and other malignancies - in terms of improvements in survival and possibly even quality of life. In the UK and Ireland, a pilot...
Rare Minds Matter: Mental Health Survey 2023
Mental health support must be an integral part of rare disease care. Today, Rare Disease Day 2023, Rareminds have launched their Rare Minds Matter campaign and are asking members of the rare disease community to fill out their mental health survey. They want to hear...