Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Welcome our new Trustee, retired GP David
We are delighted to announce the appointment of our new Trustee, David David is a semi-retired GP and received a diagnosis of Neuroendocrine Cancer in 2016. In his video here, he talks about the symptoms he experienced over a 13-year period before an official...
Kicking Cancer’s Butt – With Indomitable Spirit Award
Congratulations to one of our 'Natter' patient support group members, Leanne Armstrong, as she has just been presented with the Taekwondo 'Indomitable Spirit' Award. The past three years have been tough for Geordie Leanne, with 4 cycles of PRRT (Peptide Receptor...
Ann Edgar Charitable Trust Integration
Neuroendocrine Cancer UK (NCUK) are delighted to be able to announce that the Ann Edgar Charitable Trust (TAECT) will integrate with our charity from January 2023. The Ann Edgar Charitable Trust has been operating for 11 years and we have always had a strong...