Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Cancer Patient Experience Survey Results
Today NHS England published the 2021 results of the Cancer Patient Experience Survey. Patient experience of care is incredibly important and it’s a testament to the hard-working NHS staff that cancer patients have given the highest rating on record for overall...
Craig – NCUK’s very own Braveheart raises over £30,000 for NCUK
** APPRECIATION POST** Craig – NCUK's very own Braveheart. Please join us in thanking this wonderful human being, Craig for his incredible efforts - not only as a Neuroendocrine Cancer UK Ambassador but for being NCUK's top fundraiser. Last year Craig contacted...
Fundraiser, Patrick attempts to swim the Channel this weekend!
Out of the Blue In 2016, my father was diagnosed with stage four stomach cancer just before he planned to retire from the work he loved. He was given a very short life expectancy but in a twist of fate, two weeks later, the diagnosis was revised to a rarer...