Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Update on Lutathera® announcement by Novartis
Some of you may have seen the announcement, by Novartis, that there is a temporary, voluntary suspension of radioligand therapy production: May 5th 2022 — Novartis today announced a temporary, voluntary suspension of production at its radioligand therapy production...
Carcinoid Heart Disease : The Heart of The Matter
Carcinoid Heart Disease (CHD or Hedinger syndrome), is a rare condition that affects about one in five (20%) patients who have a Neuroendocrine Cancer AND Carcinoid Syndrome (CS). The precise cause is unknown but is thought to be related to abnormally raised levels of...
Fundraiser and Neuroendocrine Cancer patient cycles across Devon raising £6,000
Fundraiser and Neuroendocrine Cancer patient cycles across Devon raising £6,276.20 for NCUK. Well, my bike ride to raise awareness and funds for NCUK felt fantastic - two of the best days of my life! It was nearly a year ago to the day that my consultant told me that...