Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Hospital Outreach
Can you help us with reaching out to hospitals? With your help we will be able to highlight the full range of support and services we offer to the hospital teams and encourage them to inform their patients about our services. Our ask of you: By acting as a ‘bridge’...
Rethinking the “Rare”: new paper calls for greater awareness among healthcare professionals
Neuroendocrine Cancer UK are delighted that our article. ‘Are NENs no longer a rare cancer?’ has been published in the March edition of Neuroendocrinology. For the patient community, this article is a powerful step forward. It highlights the need for better...
ENETS attendance and Helpline hours
Helpline closure: Wednesday 5th March 1-4pm and Thursday 6th March 10am – 4pm As some of our team will be attending the European Neuroendocrine Cancer (ENETs) conference 5th-7th March, this will have an impact on our Helpline availability this week. We attend ENETs to...