Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Neuroendocrine Cancer Patient Vlog
📣 VOICES OF NCUK - Peter's Vlog! 💬 As a hobby, I had been making short videos for my YouTube channel sharing my love of health, fitness, and the outdoors. However, I was diagnosed with a primary neuroendocrine tumour of my small intestines which had spread to my...
Malnutrition
Malnutrition Awareness Week 11-17th October Malnutrition is a common health problem and it is estimated there are about 3 million people who are malnourished in the UK at any time. Malnutrition is caused by either an inadequate diet, poor appetite or a problem...
Look after your mental health
For this year’s World Mental Health Day the Better Health - Every Mind Matters campaign is focusing on “What works for me”, demonstrating how different actions can help us with our mental wellbeing, with a variety of simple tips offered by the NHS endorsed Mind Plan...