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NCUK Barriers to Diagnosis Survey

NCUK Barriers to Diagnosis Survey

by | Feb 17, 2021

The purpose of the NCUK to Barriers Survey was to consolidate and add to previous national and global Neuroendocrine Cancer (NC)* patient experience surveys and reports, to gain further insights into the patient pathway for those diagnosed with NC. From initial...
February Newsletter

February Newsletter

by | Feb 1, 2021

Welcome to our newsletter! As you read through, you will see that there are multiple components to running a patient organisation. We are a ‘small but vital charity’ doing a wide range of activities, ensuring that the message we are shouting gets heard across many...
At Home in Lockdown: Tips from Rareminds 

At Home in Lockdown: Tips from Rareminds 

by | Jan 31, 2021

At Home in Lockdown:  Tips from Rareminds    We’ve all got used to the saying during lockdown that ‘we are all in the same storm, but not all in the same boat.’ Some of you will be craving space in a house that feels too crowded, some of you will be craving company...
Rapid Diagnostic Clinics (RDCs)

Rapid Diagnostic Clinics (RDCs)

by | Jan 21, 2021

Rapid Diagnostic Clinics (RDCs) Rapid Diagnostic Centres (RDCs) are designed to speed up cancer diagnosis and support NHS ambitions to achieve earlier diagnosis, with improved patient experience, for all patients with cancer symptoms or suspicious results. The UK...