Advocacy & Policy Updates

Advocacy & Policy Updates

Advocacy & Policy Neuroendocrine Cancer UK was founded with the vision of providing support, raising awareness, and driving research for those affected by neuroendocrine cancer. What started as a small community initiative has now grown into a leading charity that...
PERT Update April 2025

PERT Update April 2025

PERT Update April 2025: Our PERT charities collaborative* continues to work with all stakeholders to improve supply and access to Pancreatic Enzyme Replacement Therapy (eg Creon, Nutrizym & Pancrex) A recent response to our joint letter to the Prime Minister, from...
Hospital Outreach

Hospital Outreach

Can you help us with reaching out to hospitals?  With your help we will be able to highlight the full range of support and services we offer to the hospital teams and encourage them to inform their patients about our services. Our ask of you: By acting as a ‘bridge’...
ENETS attendance and Helpline hours

ENETS attendance and Helpline hours

Helpline closure: Wednesday 5th March 1-4pm and Thursday 6th March 10am – 4pm As some of our team will be attending the European Neuroendocrine Cancer (ENETs) conference 5th-7th March, this will have an impact on our Helpline availability this week. We attend ENETs to...