by Leanne Talbot | Jul 23, 2019
With more than four in ten rare disease patients affected by depression, and significantly higher rates of illnesses like anxiety, mental health problems are a pervasive pandemic. Considering globally there are up to 8,000 different rare diseases, with around... by Leanne Talbot | Jun 27, 2019
This years summit was a collaboration of 26 member organisations from 22 countries, with a single goal to work on key strategic pillars that will promote effective, fair and equal care for all patients across the globe. There are various committees within INCA which... by Leanne Talbot | Jun 27, 2019
“You go through the stages… denial, anger, through to grief for the life that will never be the same once diagnosed with a NET to a ‘kind of’ acceptance but underneath is terror, pure terror. And the more this is recognised, acknowledged and treated, the... by Leanne Talbot | Jun 17, 2019
With over 200 delegates, from across the UK and Ireland, ACRONET 2019, held 6-7 June, was a busy and interesting educational event. This now annual event, sponsored by pharma, aims to bring together specialist NET and Endocrine nurses, and allied healthcare... by Leanne Talbot | Jun 14, 2019
Treatment of psychiatric symptoms in syndromic Neuroendocrine Tumour patients has been found to be challenging. The article below suggests that carcinoid syndrome may exacerbate psychiatric symptoms and calls for improved holistic assessment & treatment –... by Leanne Talbot | Jun 14, 2019
Cost-effectiveness and budget impact considerations are inherent in the the decision-making process for treatment reimbursement. A systematic review of the economic impact of GEP-NETs was carried out using four databases. It has been published recently in... 