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Somatostatin Analogues Review

by | May 14, 2018

** UPDATE – Please note that the closing date for the below was end of May 2018 and we are currently awaiting the outcome. Thank you ** Somatostatin Analogues (the monthly injections for treating most NETs and/or their symptoms) are going under review in...

NPF Patient Representative Attends ENETs

by | Mar 21, 2018

I attended the European Neuroendocrine Tumour Society -ENETS –  Conference last week as a patient representative and  hope it may be interesting to have some feedback. The event  was huge – much bigger than I’d expected –  for...

Sally’s NET story

by | Nov 10, 2017

As I trudged numbly from one unprofitable doctor’s appointment to another throughout 2007/8 I didn’t know that not  pinning down the reason for my increasingly severe bouts of pain and diarrhoea would nearly cost me my life.  Crohn’s disease, coeliac...

Rachael’s NET story

by | Nov 10, 2017

Here is my #NetCancer story so far…. On 29 February 2016 I was told that one thing that no one ever wants to hear, especially at the age of 32. ‘I am very sorry but you have cancer’. I was so shocked I couldn’t even blink to shed a tear. I had...