Hello, I am Leanne. A mother to a 3 year old, living in Warwickshire. In 2016 I saw an advertisement for a position at Neuroendocrine Cancer UK (back then it was NET Patient Foundation). At that time I worked for anther charity based in the same building as NCUK. When I saw the advert I felt compelled to apply. After speaking to Catherine (CEO) around the building about how the charity was set up and their ethos, I could sense her passion for the organisation and it made it a very appealing place to work.

I was terrified about my interview, and not for the normal reasons. I was terrified because I had never heard about Neuroendocrine Cancer. I remember asking my mum how to even pronounce it!

Luckily for me the interview wasn’t based on my medical knowledge and I was asked to join the team.

4 years later and I can now say I have that same passion that shone through Catherine when I first met her. Working for NCUK is not only a job for me, but I have become an advocate for our community.

The thing I’m most proud of whilst working at NCUK is organising the first NET Retreat. It was a weekend long event, where we held mindfulness and food and nutrition sessions, counselling sessions, a Q&A with the experts and ended the event with a beautiful dinner at the Penny Brohn centre in Bristol. The event was a huge success.

I wanted to take part in the Faces of Neuroendocrine Cancer campaign as when I became a new mum I felt so alone. Millions of women become mums everyday, yet I still felt so alone with what I was going through. Luckily I had people to talk to. When diagnosed with a rare disease I can only imagine how alone you feel. I want this campaign to spread far and wide so those diagnosed and living with can read the stories and know that they are not alone.

Unfortunately we are having to close our Helpline on Tuesday 6th October - however it will be open as usual on both Wednesday 7th and Thursday 8th.

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