NET Patient Foundation Research Abstracts
NPF and NCRAS Public Health England partnership project has been compiling statistics on the incidence, prevalence and survival of NET patients in England using English cancer registry data, with an aim to also access Scottish, Welsh and Northern Irish cancer registry data to also get UK wide statistics.
We carried out four pieces of research in 2017, abstracts for which can be found below:
- The Incidence and Prevalence of Neuroendocrine Tumours in England.
- The 1- year survival rates for Neuroendocrine tumour patients in England.
- Metachronus primary cancers in Neuroendocrine tumour patients.
- Neuroendocrine Tumour patients experiences of support in the community setting across the treatment trajectory.
Presenting symptoms and delay in diagnosis of gastrointestinal and pancreatic Neuroendocrine tumours
Ileocolonic neuroendocrine tumours identified in the English bowel cancer screening programme
Self-reported side effects in neuroendocrine tumour (NET) patients prescribed somatostatin analogues – the role for specialist dietitians and nurses
- Assess what symptoms/side effects patients report on SSA’s.
- Assess the severity of symptoms/side effects reported by patients whilst on SSA’s.
- Produce recommendations on how to deal with symptoms commonly experienced by patients on SSA’s.
This study has been accepted to be published in the British Journal of Nursing.
Recent News
Neuroendocrine Cancer information sent to over 45,000 GPs
Neuroendocrine Cancer is a rare and complex form of cancer that affects the neuroendocrine system, which is responsible for producing hormones that regulate various bodily functions. While relatively uncommon, it can be challenging to diagnose, often leading to...
One Cancer Voice Petition to Parliament
In a speech at the Francis Crick Institute on World Cancer Day 2022 (4 February), the then Health and Social Care Secretary, Rt Hon Sajid Javid MP, declared ‘a war on cancer’ and launched a call for evidence to underpin an ambitious 10-Year Cancer Plan for England....
INCA launches new website Research page
INCA has launched the new Research Section on www.incalliance.org INCA is committed to empower NET patients to bring robust participation in clinical trials and to play an active role in shaping patient-centered research. INCA seeks to advocate for patient involvement...