NET Patient Foundation Research Abstracts
NPF and NCRAS Public Health England partnership project has been compiling statistics on the incidence, prevalence and survival of NET patients in England using English cancer registry data, with an aim to also access Scottish, Welsh and Northern Irish cancer registry data to also get UK wide statistics.
We carried out four pieces of research in 2017, abstracts for which can be found below:
- The Incidence and Prevalence of Neuroendocrine Tumours in England.
- The 1- year survival rates for Neuroendocrine tumour patients in England.
- Metachronus primary cancers in Neuroendocrine tumour patients.
- Neuroendocrine Tumour patients experiences of support in the community setting across the treatment trajectory.
Presenting symptoms and delay in diagnosis of gastrointestinal and pancreatic Neuroendocrine tumours
Ileocolonic neuroendocrine tumours identified in the English bowel cancer screening programme
Self-reported side effects in neuroendocrine tumour (NET) patients prescribed somatostatin analogues – the role for specialist dietitians and nurses
- Assess what symptoms/side effects patients report on SSA’s.
- Assess the severity of symptoms/side effects reported by patients whilst on SSA’s.
- Produce recommendations on how to deal with symptoms commonly experienced by patients on SSA’s.
This study has been accepted to be published in the British Journal of Nursing.
Recent News
Dr Garan Jones – Research Grant Winner
Winner of Neuroendocrine Cancer UK's £30,000 grant for research Dr Garan Jones, the University of Exeter - "Our research project is titled “Determining the role of alternate splicing in the development of Small Intestine Neuroendocrine tumours (SI-NET)”. Alternative...
Olutaton®
Neuroendocrine Cancer UK has been made aware that there is an imminent issue regarding the availability of Olatuton® (Octreotide long-acting) somatostatin analogue injections. This is due to a legal issue that has led to the withdrawal of Olutaton®: it will not be...
Why do we have a Moth on our logo?
In medicine, the term “zebra” is used in reference to a rare disease or condition. “If you hear hooves, you assume horse.” The rare disease community wants you to consider zebra. We agree with and advocate this message. However due to the rise in incidence of...