In medicine, the term “zebra” is used in reference to a rare disease or condition. “If you hear hooves, you assume horse.” The rare disease community wants you to consider zebra. We agree with and advocate this message. However due to the rise in incidence of Neuroendocrine Cancer, it is now less likely to be considered rare.

We have purposely chosen to use the moth as a symbol of our identity as it is often mistaken for a butterfly, or vice versa. People see a pleasant looking or ‘good moth’ and assume butterfly, on closer inspection it is shown to be a moth. People often assume that Neuroendocrine is one of the ‘good cancers’ – we know this not to be true. We ask that you consider the power of an assumption, and always take a closer look.