Monday 25th October saw the launch of the NHS Cancer Quality of Life Survey data dashboard.
The survey is for people in England who have been diagnosed with cancer. From 2020, people who have had a breast, prostate or colorectal (bowel) cancer diagnosis are being asked to complete the survey around 18 months after diagnosis. From July 2021 the process of rolling out the survey to all cancer patients around 18 months after diagnosis began.
About the survey
The cancer quality of life survey is a national survey run by NHS England and NHS Improvement and NHS Digital. People who have had a cancer diagnosis are being asked to complete the survey around 18 months after diagnosis.
Information from the survey is one of a range of resources that will be used to work out where improvements should be made to care, with the goal of improving quality of life for people diagnosed with cancer.
The survey is made up of two questionnaires that measure overall health (EQ-5D) and quality of life (EORTC QLQ-C30).
EQ-5D can be used for any patient group and the general population. We use this questionnaire to compare scores from the cancer survey respondents and the general population, and between different groups of cancer survey respondents.
The EORTC QLQ-C30 is a cancer specific questionnaire. We use this questionnaire to report scores from the cancer survey respondents overall, and to compare different groups of cancer survey respondents.
For general information about the survey, please visit the main cancer quality of life survey site.
Click here for more information about the questionnaires and how the scores are calculated.
Watch a demonstration to learn more about the dashboard and the different ways you can look at the data.
Where can I find out more?
You can find more information about the survey and answers to frequently asked questions under Information for Patients or Information for Healthcare Staff. You can also read NHS Digital’s Privacy Notice which explains how your data is used for the purposes of the survey. For information about contacting the Information Commissioner, please visit: https://ico.org.uk
Who has approved this survey?
The Cancer Quality of Life survey has been evaluated by the NHS Data Coordination Board and has met the required assurance quality criteria. You can see a copy of the Assurance Certificate awarded by the Data Coordination Board. More information about the assurance process and current standards is on the NHS Digital website.