Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
Since 2008, Rare Disease Day has brought together millions of people worldwide in solidarity with the 300 million people living with a rare disease.
This year you can join the global patient-led campaign in many different ways! For example:
- Organising an event and posting it on our world map,
- Participating in the #LightUpforRare campaign by illuminating your home or a monument in your city,
- Downloading the Rare Disease Day social media toolkits, resources, and webinars
Whether you are a policy maker, a health advocate, a patient organisation, a person living with a rare disease, or a family member, everyone is invited to share their colours and take part in Rare Disease Day 2022!