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Neuroendocrine Cancer Community

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Join a Clinical Trial

If you are searching for trials, it can help to first pull together as much information about your particular neuroendocrine cancer – as this may help you to narrow down your search and identify a trial that is suitable for you.

Trials will always have a list of eligibility or inclusion/exclusion criteria.

This is a list of characteristics that all patients must have to be accepted onto the study. Types of eligibility criteria can include: age, and current health status but may also specify disease-specific criteria.

For example:

  • The type and primary site of neuroendocrine cancer
  • If it is a functioning or a non-functioning neuroendocrine cancer
  • The grade of neuroendocrine tumour
  • If the tumour is well-differentiated or poorly differentiated
  • Any available genetic or genomic  information for example specific biomarkers or receptors.

    Further explanations of these terms can be found here.

    If you are unsure about your specific diagnosis speak to your care team or GP, or contact us for advice on how and where to obtain this information.

    Some trials may look at one particular type or site of Neuroendocrine Cancer, whereas others may include a range of types and /or other cancers.

    Talk To Your Care Team

    If you find a trial you think you may eligible for you can discuss it with your specialist team.

    Your doctor can refer you to trials appropriate for you:

    • They will also be able to contact the team running the trial and find out more information about it.
    • They will be able to review the information about the trial  – alongside all of the things they know about you, your current health and previous treatments – to see if the trial is suitable for you.

    Being under a specialist neuroendocrine team, or having access to that team, ensures that you have access to experts – who will not only have knowledge and experience about your particular cancer and care pathway but also information about or direct involvement in specific Neuroendocrine Cancer research – so will be able to answer questions you may have about clinical trials.