SCAN 2019
This autumn the International Neuroendocrine Cancer Alliance INCA invites NET patients and healthcare professionals to scan the access challenges to optimal care for NET patients.
Recent News
Olutaton®
Neuroendocrine Cancer UK has been made aware that there is an imminent issue regarding the availability of Olatuton® (Octreotide long-acting) somatostatin analogue injections. This is due to a legal issue that has led to the withdrawal of Olutaton®: it will not be...
Why do we have a Moth on our logo?
In medicine, the term “zebra” is used in reference to a rare disease or condition. “If you hear hooves, you assume horse.” The rare disease community wants you to consider zebra. We agree with and advocate this message. However due to the rise in incidence of...
When Nikie met Sally…
I first met Sally in 2015, not long after I started with NCUK - little did I realise, at the time, what an incredible force of nature this softly spoken lady is. Sally is a retired computer systems analyst and lecturer living in South Wales. She was first diagnosed...