Supporting the

Neuroendocrine Cancer Community

Welcome our new Trustee, retired GP David

Welcome our new Trustee, retired GP David

We are delighted to announce the appointment of our new Trustee, David David is a semi-retired GP and received a diagnosis of Neuroendocrine Cancer in 2016. In his video here, he talks about the symptoms he experienced over a 13-year period before an official...
Carcinoid Heart Disease : The Heart of The Matter

Carcinoid Heart Disease : The Heart of The Matter

Carcinoid Heart Disease (CHD or Hedinger syndrome), is a rare condition that affects about one in five (20%) patients who have a Neuroendocrine Cancer AND Carcinoid Syndrome (CS). The precise cause is unknown but is thought to be related to abnormally raised levels of...
Carcinoid Syndrome

Carcinoid Syndrome

Carcinoid Syndrome is primarily associated with Neuroendocrine Tumours (NETs) that form in the Small Bowel, but may also occur in about 10% of primary Lung or Gynaecological (uterus, cervix, ovary and vagina) NETs. It may not present in the early stages of disease,...
Small Bowel Neuroendocrine Cancer Symptoms

Small Bowel Neuroendocrine Cancer Symptoms

NOT JUST NE CANCER SERIES: LOWER GI ~ Small Bowel Neuroendocrine Cancer Symptoms.   Symptoms MAY include: Moderate to severe abdominal bloating and/or cramping pain Diarrhoea – that may be more urgent/frequent in early hours to mid morning and/or related to skin...
Functioning Pancreatic Neuroendocrine Cancer Symptoms

Functioning Pancreatic Neuroendocrine Cancer Symptoms

NOT JUST NE CANCER SERIES: UPPER GI ~ Functioning Pancreatic Neuroendocrine Cancer Symptoms.   Symptoms tend to be hormone driven and MAY include:   – Insulinoma: low blood sugar level, dizziness, light-headedness, sweating, hunger and weight gain –...