A BIG THANKS TO ALL WHO TOOK PART

The day may be over but the work around earlier diagnosis is a priority here at NCUK, and through our Bridging the Gapcampaign we will continue working with Health Care Professionals to raise awareness and improve education about this cancer. We will also continue our program working with NHS commissioners, NHS leaders and all key stakeholders to drive change and ultimately develop an optimal care pathway for all those affected by Neuroendocrine Cancer.

Know the symptoms. Push for diagnosis.
#LetsTalkAboutNETs

VIRTUAL PATIENT SUMMIT – ROUNDUP

During the lead up to World Neuroendocrine Cancer Day we released a daily video, as part of our NCUK Virtual Summit. Thank you to all those who have already tuned in to watch, we hope you found some advice and comfort within the range of topics available.

To those who haven’t yet had a chance to view these talks, all videos are now available on our website for you to watch anytime.

As a reminder, the Summit is made up of three parts:

PART 1. MONEY RIGHTS & SERVICES

PART 2. DIFFICULT CONVERSATIONS

PART 3. ‘LIVING WITH’

Please click on the button below to visit the Summit page on our website.

Thanks to all of our wonderful speakers

We would also like to take this opportunity to say a heartfelt thanks to all our Summit speakers for dedicating their time and sharing their experiences and expertise with the Neuroendocrine Cancer community.

Thank you to:

• John Surgenor – Insurance, Pensions, Wills, and Legacies
• Chloe Gifford – Benefits Advice
• Julie Denning – Returning to Work Support
• Dr Mairéad McNamara – Advanced Disease
• Philip Lodge – Role of Palliative Care
• Nikie Jervis – Advanced Disease Decision Making
• Julia Segal – Sex, NETs and Relationships
• Maria Page – Living with, Newly Diagnosed
• Jane Aylott – Living with, 2 Years on
• Ashley Black – Living with, Stable
• Kath Lewis – Living with, Progression/Recurrence

COLLABORATIVE WORK

NCUK would like to extend our thanks to all those at INCA and ENETS for their collaborative effort on delivering a successful World Neuroendocrine Cancer Day.

The Educational Webinar was a particular highlight, so a big thanks to all of the informative speakers who took part.

If you missed the webinar, the link to the full recording is now available on our website.

Please visit the link below to see the webinar recording.

THANKS TO OUR COMMUNITY FOR GETTING INVOLVED!

The most frustrating thing was knowing something was wrong but not being able to get a referral because I didn’t have ‘classic’ cancer symptoms – Kerie.

A special thanks to all those who have submitted their own NET Cancer Day posters, shared our ‘Faces & Facts’ video and distributed our Symptoms & Awareness postcards.

Thanks to you, we have been able to raise awareness and create a wider and deeper conversation about Neuroendocrine Cancer across the world.

Always make time to enjoy the things in life that make you smile – Kevin

FACES & FACTS VIDEO

And finally, a big thank you to all those who took part in our ‘Faces & Facts’ video.

We have already reached over 14,000 people with this awareness video and we would be grateful if our community could continue to share this message far and wide, beyond World Neuroendocrine Cancer Day.

Together we can educate others, raise awareness and advocate for change for all those affected by Neuroendocrine Cancer.

Whether you’re newly diagnosed or living with Neuroendocrine Cancer, please remember that we’re always here to support you.