Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Do You C Us?
Neuroendocrine Cancer UK are Delighted to be here at the 'Do you C Us' Parliamentary event driven by Cancer 52, and chaired by Paul Bristow MP. Raising awareness of the issues around Rare and Uncommon Cancers. Other speakers including Jane Lyons (CEO) Dr Ellie...
Neuroendocrine Cancer Diagnosis
In 2020 we asked for members of our community to share their experiences of care to date. The purpose of this survey was to consolidate and add to previous national and global Neuroendocrine Cancer (NC)* patient experience surveys and reports, to gain further insights...
Stomach NENs
Stomach NENs are rare and account for less than 2% of all stomach cancers. Of those that occur, there are 3 key types – potentially 4*: 1️⃣ Type 1: The most common (70-80%) is usually quite small (less than 10mm) and may be multiple, it is rarely aggressive, usually...