Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Neuroendocrine Cancer UK CEO Highlights the Importance of Industry Partnerships for Patient Organisations
Neuroendocrine Cancer UK's CEO & Co-Founder, Catherine Bouvier, recently shared her most significant takeaway from Makara Health's Good Patient Partnership Guide. In her own words, "For any patient organisation, building more awareness of what we do in the...
Medical Experts and Patients Working Collaboratively and Speaking the Same Language
The International Neuroendocrine Cancer Alliance (INCA) and the European Neuroendocrine Tumour Society (ENETS) held a symposium on March 23, 2023, during the 20th Annual ENETS Conference. The symposium, titled "Working Together to Improve Patient Outcomes,"...
Neuroendocrine Cancer Symptoms Awareness Card
Neuroendocrine Cancer UK's GP Awareness Cards are an essential tool for raising awareness of Neuroendocrine Cancer and encouraging early diagnosis. By ordering and distributing these cards to your local clinics and GP practices, you can help make a real difference in...