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  • Neuroendocrine Cancer
    • Neuroendocrine Cancer UK Virtual Handbook
    • What Is Neuroendocrine Cancer?
      • Hormones
    • Just Diagnosed
    • Symptoms and Syndromes
    • Tests & Getting Results
    • Specialist Care & Centres of Excellence
    • Your Cancer Site
      • Adrenal
      • Appendix
      • Breast
      • Cancer of the Unknown Primary
      • Duodenal
      • Female Reproductive System
      • Goblet Cell
      • Large Bowel
      • Lung
      • Pancreas
      • Pheochromocytoma and Paraganglioma (PPGL)
      • Prostate
      • Rectum
      • Secondary NC
      • SKIN (MCC) Merkel Cell Carcinoma
      • Small Bowel
      • Stomach
      • Testicles
      • Thymus
      • Thyroid
    • Treatments
    • Living with Neuroendocrine Cancer
      • Diet & Nutrition
    • End of Life
  • Help and Support
    • Support Groups
      • Join a Support Group
    • Counselling and Mental Health
    • Patient Resources
    • Stories & Experiences
    • Events and Conferences
    • Webinars
    • Podcasts
    • Blogs
    • Our Online Community
    • Financial Support
  • Research & Our Campaign Work
    • Research
      • Find a Clinical Trial
      • Research Information Hub
      • Funding Research
      • Research Papers from around the World
    • Neuroendocrine Cancer: An Ideal Patient Care Pathway
    • Advancing Neuroendocrine Cancer Research
      • Practice-changing Grants
    • Spotlight on Neuroendocrine Cancer
    • Open Conversations
    • World Neuroendocrine Cancer Day
    • Neuroendocrine Life Alliance
  • Support Us & Get Involved
    • Donate
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      • Cakes for a Cause
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NETS and Everolimus, by Jon

NETS and Everolimus, by Jon

by Leanne Talbot | Sep 18, 2025 | Patient Stories, Patient Stories & Experiences

Name: Jon Neuroendocrine Cancer Site: Pancreas Diagnosed: 2017 – Jon’s Story When I was diagnosed with neuroendocrine tumours in April 2017, I had already been trying to get a diagnosis for more than three years – sound familiar?   Following a colonoscopy...
From Diagnosis to Surgery: Nick’s Experience with Pancreatic Neuroendocrine Cancer

From Diagnosis to Surgery: Nick’s Experience with Pancreatic Neuroendocrine Cancer

by Leanne Talbot | Aug 28, 2025 | Patient Stories, Patient Stories & Experiences

Name: Nick Neuroendocrine Cancer Site: Pancreas Hospital: London Bridge Hospital (Private) Diagnosed: 2024 – Nick’s Story  Reflection After Surgery I’m writing this as a postscript nearly 10 weeks after my distal pancreatectomy and splenectomy, now that...
Illness Upon Illness, by Katie

Illness Upon Illness, by Katie

by Leanne Talbot | Aug 8, 2025 | Patient Stories, Patient Stories & Experiences

Name: Katie  Neuroendocrine Cancer Site: Pancreas Neuroendocrine Cancer Hospital: Hammersmith Hospital, part of Imperial NHS Foundation Trust London   – Katie’s Story I was a ballet dancer before I first became ill. My life was class, rehearsals,...
Living with Small Bowel Neuroendocrine Cancer and Liver Metastases, by Paul

Living with Small Bowel Neuroendocrine Cancer and Liver Metastases, by Paul

by Leanne Talbot | Jul 31, 2025 | Patient Stories, Patient Stories & Experiences

Name: Paul  Neuroendocrine Cancer Site: Small Bowel Primary, Liver Metastases Diagnosis: November 2022 Neuroendocrine Cancer Hospital: Queen Elizabeth, Birmingham  – Paul’s Story I suspect my route to diagnosis might be familiar to many here. After years...
From Diagnosis to Doing My Own Jab: My Lanreotide Learning Curve, Midge’s Story

From Diagnosis to Doing My Own Jab: My Lanreotide Learning Curve, Midge’s Story

by Leanne Talbot | Jul 9, 2025 | Patient Stories, Patient Stories & Experiences

Name: Midge Neuroendocrine Cancer Primary Site: Small Bowel Diagnosed: December 2023  Neuroendocrine Cancer Specialist Centre: Queen Elizabeth Hospital, Birmingham –  Midge’s Story  “Mr Jones, we think we can see something on your ultrasound. But it’s...
Learning to Breathe Again: Laura’s Neuroendocrine Cancer Diagnosis at 28

Learning to Breathe Again: Laura’s Neuroendocrine Cancer Diagnosis at 28

by Leanne Talbot | Jun 24, 2025 | Patient Stories, Patient Stories & Experiences

Name: Laura Lonergan   Neuroendocrine Cancer Site: Lung Neuroendocrine Cancer – Atypical Carcinoid (AC)   Diagnosis Date: March 2024  Neuroendocrine Cancer Specialist Hospital: The Christie NHS Foundation Trust   – Laura’s Story ‘I work for the...
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Neuroendocrine Cancer UK is a UK wide charity solely dedicated to providing support and information to those affected by Neuroendocrine Cancer.

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Hero Awards 2025 Now Live!

Neuroendocrine Cancer UK are proud to announce that the Hero Awards are returning for their second year with the aim of recognising and celebrating the bravery and resilience of neuroendocrine cancer patients, the dedication and support of medical professionals, the love and encouragement from friends and family, and the extraordinary fundraising achievements that enable Neuroendocrine Cancer UK to continue its vital work.

Please CLICK HERE to visit our Hero Awards webpage for information on how to nominate your Neuroendocrine Cancer UK Hero!