Name: Leanne Neuroendocrine Cancer Site: Primary tumour in my rectum and metastases in my liver and thyroid. Hospital: Newcastle Freeman Hospital – Initial Diagnosis I was originally diagnosed in August 2019, with a primary tumour in my rectum and metastases...
Name: Tricia Hospital: The Royal Free – When my Professor told me that he would be recommending PRRT (Peptide Receptor Radionuclide Therapy) as the next step in my treatment plan, I went straight to the ‘Natter’ support group for advice. These groups have...
Name: Carolyn Neuroendocrine Cancer Site: Bowel and secondary liver mets Hospital: Royal Free Hospital, and local. – Carolyn’s Story: Lanreotide. Love it or hate it, it’s been my friend and part of my life since 2011 when liver metastases showed up on a...
Neurodivergence is wider than autism, but this piece specifically refers to autism. – Autism is a spectrum disorder, so it is variable: no one with autism experiences being autistic in the same way, so although this is my experience, and there are...
A ‘carer’s’ experience is not the same as a patient’s. It can’t be. But the fallout from the stress and anxiety can be just as overwhelming. There have even been times when I’ve experienced both burnout and compassion fatigue. – My name is Polly Bell and...
Name: Carolyn Neuroendocrine Cancer Site: Bowel Hospital: The Royal Free – Carolyn’s Story My name is Carolyn Evans, and in August 2005, I was in hospital recovering from bowel surgery when a nurse came up to me and said: “Don’t stop eating your lunch,...
