I first met Barrie, not long after I joined Neuroendocrine Cancer UK, about 7 years ago, at a Natter group: one he co-founded and facilitated in Letchworth Garden City. He’d been diagnosed with Neuroendocrine Cancer in 2008, and first became aware of and involved with...
Name: Kate Neuroendocrine Cancer site: Tail of pancreas and secondaries in the liver KATE’S STORY Hello, my name is Kate and I have been living with neuroendocrine cancer for 13 years. I feel lucky to be here to see my family grow up. It took three visits...
I was diagnosed with Stage IV Neuroendocrine Cancer in October 2015. The primary tumour was in my small intestine with metastasis to liver and lymph nodes. Diagnosis came both as an absolute shock (I had run a half marathon two days before) and as a relief...
I was diagnosed in 2014 with a primary pancreatic NET that had spread to my liver. Following this diagnosis I had Whipples procedure and liver resection at Kings College hospital in February 2015, I was 41 years old. I was single at the time and living...
On the 3rd August 2016 my life changed forever. For some reason it felt as though I couldn’t digest my food. I increasingly felt unwell. That evening I decided that I would go out with my wife for a meal to try & help me feel better. I couldn’t even...
On January 2, 2015, I had a life-changing experience: I almost died. I was suddenly hospitalized with internal bleeding caused by a neuroendocrine tumor (NET) on my pancreas, which had metastasized to my liver. The tumors were crushing my spleen and pressing against a...
