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  • Neuroendocrine Cancer
    • Neuroendocrine Cancer UK Virtual Handbook
    • What Is Neuroendocrine Cancer?
      • Hormones
    • Just Diagnosed
    • Symptoms and Syndromes
    • Tests & Getting Results
    • Specialist Care & Centres of Excellence
    • Your Cancer Site
      • Adrenal
      • Appendix
      • Breast
      • Cancer of the Unknown Primary
      • Duodenal
      • Female Reproductive System
      • Goblet Cell
      • Large Bowel
      • Lung
      • Pancreas
      • Pheochromocytoma and Paraganglioma (PPGL)
      • Prostate
      • Rectum
      • Secondary NC
      • SKIN (MCC) Merkel Cell Carcinoma
      • Small Bowel
      • Stomach
      • Testicles
      • Thymus
      • Thyroid
    • Treatments
    • Living with Neuroendocrine Cancer
      • Diet & Nutrition
    • End of Life
  • Help and Support
    • Support Groups
      • Join a Support Group
    • Counselling and Mental Health
    • Patient Resources
    • Stories & Experiences
    • Events and Conferences
    • Webinars
    • Podcasts
    • Blogs
    • Our Online Community
    • Financial Support
  • Research & Our Campaign Work
    • Research
      • Find a Clinical Trial
      • Research Information Hub
      • Funding Research
      • Research Papers from around the World
    • Neuroendocrine Cancer: An Ideal Patient Care Pathway
    • Advancing Neuroendocrine Cancer Research
      • Practice-changing Grants
    • Spotlight on Neuroendocrine Cancer
    • Open Conversations
    • World Neuroendocrine Cancer Day
    • Neuroendocrine Life Alliance
  • Support Us & Get Involved
    • Donate
      • In Memory
    • Fundraise for us
      • Cakes for a Cause
      • Daily Dip 4 Dave
      • Raise funds online
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  • Hero Awards
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  • For Health Professionals
    • Practical Guides
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    • Neuroendocrine Cancer Patient Case Studies for Healthcare Professionals
    • Professional Development Courses
    • Neuroendocrine Cancer Guidelines
  • About Us
    • Our Ambassadors, Medical Advisory Board and Collaborators
    • Annual Accounts and Strategy
  • Contact Us
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From Cramps to Clarity, by Andrew

From Cramps to Clarity, by Andrew

by Leanne Talbot | Oct 9, 2025 | Patient Stories, Patient Stories & Experiences

Name: Andrew  Neuroendocrine Cancer Site: Small Bowel  Diagnosed: October 2024 Neuroendocrine Cancer Hospital: Basingstoke and North Hampshire Hospital  – Andrew’s Story I work for a small engineering distribution company, and my job involves both office...
NETS and Everolimus, by Jon

NETS and Everolimus, by Jon

by Leanne Talbot | Sep 18, 2025 | Patient Stories, Patient Stories & Experiences

Name: Jon Neuroendocrine Cancer Site: Pancreas Diagnosed: 2017 – Jon’s Story When I was diagnosed with neuroendocrine tumours in April 2017, I had already been trying to get a diagnosis for more than three years – sound familiar?   Following a colonoscopy...
From Diagnosis to Surgery: Nick’s Experience with Pancreatic Neuroendocrine Cancer

From Diagnosis to Surgery: Nick’s Experience with Pancreatic Neuroendocrine Cancer

by Leanne Talbot | Aug 28, 2025 | Patient Stories, Patient Stories & Experiences

Name: Nick Neuroendocrine Cancer Site: Pancreas Hospital: London Bridge Hospital (Private) Diagnosed: 2024 – Nick’s Story  Reflection After Surgery I’m writing this as a postscript nearly 10 weeks after my distal pancreatectomy and splenectomy, now that...
Illness Upon Illness, by Katie

Illness Upon Illness, by Katie

by Leanne Talbot | Aug 8, 2025 | Patient Stories, Patient Stories & Experiences

Name: Katie  Neuroendocrine Cancer Site: Pancreas Neuroendocrine Cancer Hospital: Hammersmith Hospital, part of Imperial NHS Foundation Trust London   – Katie’s Story I was a ballet dancer before I first became ill. My life was class, rehearsals,...
Living with Small Bowel Neuroendocrine Cancer and Liver Metastases, by Paul

Living with Small Bowel Neuroendocrine Cancer and Liver Metastases, by Paul

by Leanne Talbot | Jul 31, 2025 | Patient Stories, Patient Stories & Experiences

Name: Paul  Neuroendocrine Cancer Site: Small Bowel Primary, Liver Metastases Diagnosis: November 2022 Neuroendocrine Cancer Hospital: Queen Elizabeth, Birmingham  – Paul’s Story I suspect my route to diagnosis might be familiar to many here. After years...
From Diagnosis to Doing My Own Jab: My Lanreotide Learning Curve, Midge’s Story

From Diagnosis to Doing My Own Jab: My Lanreotide Learning Curve, Midge’s Story

by Leanne Talbot | Jul 9, 2025 | Patient Stories, Patient Stories & Experiences

Name: Midge Neuroendocrine Cancer Primary Site: Small Bowel Diagnosed: December 2023  Neuroendocrine Cancer Specialist Centre: Queen Elizabeth Hospital, Birmingham –  Midge’s Story  “Mr Jones, we think we can see something on your ultrasound. But it’s...
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Neuroendocrine Cancer UK is a UK wide charity solely dedicated to providing support and information to those affected by Neuroendocrine Cancer.

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Listen to our latest podcast episode!

Our latest ‘Not Just NE Cancer’ podcast episode has now bee released and it’s a very special one!

In this episode of the Not Just NE Cancer podcast, Cathy speaks to Ruth, the incredible fundraiser and founder behind ‘Daily Dip 4 Dave’.

Please enjoy this episode which shines a light on why ‘Daily Dip 4 Dave’ started, including Ruth’s most memorable dips and please join us on Saturday 11th October 2025 for the National ‘Daily Dip 4 Dave’ Day.

One day. Hundreds of dips. Wherever you are, however you do it, just dip!

LISTEN HERE