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  • Neuroendocrine Cancer
    • Neuroendocrine Cancer UK Virtual Handbook
    • What Is Neuroendocrine Cancer?
      • Hormones
    • Just Diagnosed
    • Symptoms and Syndromes
    • Tests & Getting Results
    • Specialist Care & Centres of Excellence
    • Your Cancer Site
      • Adrenal
      • Appendix
      • Breast
      • Cancer of the Unknown Primary
      • Duodenal
      • Female Reproductive System
      • Goblet Cell
      • Large Bowel
      • Lung
      • Pancreas
      • Pheochromocytoma and Paraganglioma (PPGL)
      • Prostate
      • Rectum
      • Secondary NC
      • SKIN (MCC) Merkel Cell Carcinoma
      • Small Bowel
      • Stomach
      • Testicles
      • Thymus
      • Thyroid
    • Treatments
    • Living with Neuroendocrine Cancer
      • Diet & Nutrition
    • End of Life
  • Help and Support
    • Support Groups
      • Join a Support Group
    • Counselling and Mental Health
    • Patient Resources
    • Stories & Experiences
    • Events and Conferences
    • Webinars
    • Podcasts
    • Blogs
    • Our Online Community
    • Financial Support
  • Research & Our Campaign Work
    • Research
      • Find a Clinical Trial
      • Research Information Hub
      • Funding Research
      • Research Papers from around the World
    • Neuroendocrine Cancer: An Ideal Patient Care Pathway
    • Advancing Neuroendocrine Cancer Research
      • Practice-changing Grants
    • Spotlight on Neuroendocrine Cancer
    • Open Conversations
    • World Neuroendocrine Cancer Day
    • Neuroendocrine Life Alliance
  • Support Us & Get Involved
    • Donate
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    • Annual Accounts and Strategy
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Caring for a Loved One with Neuroendocrine Cancer, by Dave

Caring for a Loved One with Neuroendocrine Cancer, by Dave

by Leanne Talbot | Jun 12, 2025 | Patient Stories, Patient Stories & Experiences

Dave shares his powerful 20-year journey as a caregiver to his wife Deb, living with stage 4 neuroendocrine cancer. From misdiagnosis to expert care at The Christie, his story offers insight, advice, and hope for other families and caregivers. Name: Dave  Wife’s...
When Symptoms Speak Louder Than Scans, by Donna

When Symptoms Speak Louder Than Scans, by Donna

by Leanne Talbot | May 29, 2025 | Patient Stories, Patient Stories & Experiences

Name: Donna  Neuroendocrine Cancer Site(s): Likely small bowel, and possibly the pancreas  Diagnosed: December 2023  Neuroendocrine Cancer Hospital: Glasgow Royal Infirmary  – Donna’s Story: One of the hardest parts of my neuroendocrine cancer diagnosis...
A Chance Discovery, by Hayley

A Chance Discovery, by Hayley

by Leanne Talbot | May 15, 2025 | Patient Stories, Patient Stories & Experiences

Name: Hayley  Neuroendocrine Cancer Site: Lung (Typical Carcinoid)   Neuroendocrine Cancer Hospital: Oxford Churchill NET Centre of Excellence  Diagnosis: April 2024  – Hayley’s Story I was diagnosed in April 2024 with the rather vague description of ‘lung...
My Life with Low Grade Tumours, by Angela

My Life with Low Grade Tumours, by Angela

by Leanne Talbot | May 1, 2025 | Patient Stories, Patient Stories & Experiences

Name: Angela  Neuroendocrine Cancer Site: Ileum  Hospital: Southampton Diagnosed: 2019   – Angela’s Story  Living with neuroendocrine tumours (NETS) is such a double-edged sword, isn’t it?    Innately, we want to survive for as long as possible. It’s our...
Rare, But Not Alone by Louise

Rare, But Not Alone by Louise

by Leanne Talbot | Apr 16, 2025 | Patient Stories, Patient Stories & Experiences

Name: Louise  Neuroendocrine Cancer Primary Site: Maxillary Sinus Diagnosed: January 2024  Hospital: Morriston Hospital, South Wales  – Louise’s Story – Diagnosis The 3rd of January 2024 is not a date I will easily forget.  My diagnosis took place at...
My Life with Low Grade Tumours, by Angela

Coming to Terms with Tumours, by Angela 

by Leanne Talbot | Apr 3, 2025 | Patient Stories, Patient Stories & Experiences

Name: Angela Neuroendocrine Cancer Primary Site: Ileum Specialist Centre: Southampton Diagnosed: 2019  – Angela’s Story – To Work or Not to Work?  That is the question. Coming to terms with NETS   Life Before Diagnosis In October 2019 I was working...
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Neuroendocrine Cancer UK is a UK wide charity solely dedicated to providing support and information to those affected by Neuroendocrine Cancer.

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Hero Awards 2025 Now Live!

Neuroendocrine Cancer UK are proud to announce that the Hero Awards are returning for their second year with the aim of recognising and celebrating the bravery and resilience of neuroendocrine cancer patients, the dedication and support of medical professionals, the love and encouragement from friends and family, and the extraordinary fundraising achievements that enable Neuroendocrine Cancer UK to continue its vital work.

Please CLICK HERE to visit our Hero Awards webpage for information on how to nominate your Neuroendocrine Cancer UK Hero!