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  • Neuroendocrine Cancer
    • Neuroendocrine Cancer UK Virtual Handbook
    • What Is Neuroendocrine Cancer?
      • Hormones
    • Just Diagnosed
    • Symptoms and Syndromes
    • Tests & Getting Results
    • Specialist Care & Centres of Excellence
    • Your Cancer Site
      • Adrenal
      • Appendix
      • Breast
      • Cancer of the Unknown Primary
      • Duodenal
      • Female Reproductive System
      • Goblet Cell
      • Large Bowel
      • Lung
      • Pancreas
      • Pheochromocytoma and Paraganglioma (PPGL)
      • Prostate
      • Rectum
      • Secondary NC
      • SKIN (MCC) Merkel Cell Carcinoma
      • Small Bowel
      • Stomach
      • Testicles
      • Thymus
      • Thyroid
    • Treatments
    • Living with Neuroendocrine Cancer
      • Diet & Nutrition
    • End of Life
  • Help and Support
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      • Join a Support Group
    • Counselling and Mental Health
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  • Research & Our Campaign Work
    • Research
      • Find a Clinical Trial
      • Research Information Hub
      • Funding Research
      • Research Papers from around the World
    • Neuroendocrine Cancer: An Ideal Patient Care Pathway
    • Advancing Neuroendocrine Cancer Research
      • Practice-changing Grants
    • Spotlight on Neuroendocrine Cancer
    • Open Conversations
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  • Support Us & Get Involved
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The Gift of Grandchildren: Margaret’s Story

The Gift of Grandchildren: Margaret’s Story

by Leanne Talbot | Dec 11, 2024 | Patient Stories, Patient Stories & Experiences

Name: Margaret Watt  Diagnosed: 2018.  Primary Site: Small Bowel  UK NET Centre of Excellence: Glasgow Beatson  – Introduction My name is Margaret, and I am grandmother to four beautiful grandchildren: Owen (18), Paige and Payton (14), and Poppy (2). Six years...
A Businessman’s Blog, By Alan

A Businessman’s Blog, By Alan

by Leanne Talbot | Nov 21, 2024 | Patient Stories, Patient Stories & Experiences

Primary Neuroendocrine Cancer Site: Pancreas NET Centre of Excellence: The Christie NHS Foundation Trust, Manchester – Living with Pancreatic Neuroendocrine Cancer I’m writing this in November 2024, and at this moment in time, I aim to find a way to live with my...
Taking Part in Research, by Leanne

Taking Part in Research, by Leanne

by Leanne Talbot | Aug 7, 2024 | Patient Stories, Patient Stories & Experiences

Name: Leanne Neuroendocrine Cancer Site: Primary tumour in my rectum and metastases in my liver and thyroid. Hospital: Newcastle Freeman Hospital –   Initial Diagnosis I was originally diagnosed in August 2019, with a primary tumour in my rectum and metastases...
PRRT, Two Years on, by Tricia

PRRT, Two Years on, by Tricia

by Leanne Talbot | Jul 25, 2024 | Patient Stories, Patient Stories & Experiences

Name: Tricia Hospital: The Royal Free –   When my Professor told me that he would be recommending PRRT (Peptide Receptor Radionuclide Therapy) as the next step in my treatment plan, I went straight to the ‘Natter’ support group for advice. These groups have...
Long Time Living with Lanreotide, by Carolyn

Long Time Living with Lanreotide, by Carolyn

by Leanne Talbot | Jul 18, 2024 | Patient Stories, Patient Stories & Experiences

Name: Carolyn Neuroendocrine Cancer Site: Bowel and secondary liver mets Hospital: Royal Free Hospital, and local. – Carolyn’s Story: Lanreotide. Love it or hate it, it’s been my friend and part of my life since 2011 when liver metastases showed up on a...
Neurodivergence and Neuroendocrine Cancer 

Neurodivergence and Neuroendocrine Cancer 

by Leanne Talbot | Jun 18, 2024 | Patient Stories, Patient Stories & Experiences

Neurodivergence is wider than autism, but this piece specifically refers to autism. – Autism is a spectrum disorder, so it is variable: no one with autism experiences being autistic in the same way, so although this is my experience, and there are...
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Neuroendocrine Cancer UK is a UK wide charity solely dedicated to providing support and information to those affected by Neuroendocrine Cancer.

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Listen to our latest podcast episode!

Our latest ‘Not Just NE Cancer’ podcast episode has now bee released and it’s a very special one!

In this episode of the Not Just NE Cancer podcast, Cathy speaks to Ruth, the incredible fundraiser and founder behind ‘Daily Dip 4 Dave’.

Please enjoy this episode which shines a light on why ‘Daily Dip 4 Dave’ started, including Ruth’s most memorable dips and please join us on Saturday 11th October 2025 for the National ‘Daily Dip 4 Dave’ Day.

One day. Hundreds of dips. Wherever you are, however you do it, just dip!

LISTEN HERE