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  • Neuroendocrine Cancer
    • Neuroendocrine Cancer UK Virtual Handbook
    • What Is Neuroendocrine Cancer?
      • Hormones
    • Just Diagnosed
    • Symptoms and Syndromes
    • Tests & Getting Results
    • Specialist Care & Centres of Excellence
    • Your Cancer Site
      • Adrenal
      • Appendix
      • Breast
      • Cancer of the Unknown Primary
      • Duodenal
      • Female Reproductive System
      • Goblet Cell
      • Large Bowel
      • Lung
      • Pancreas
      • Pheochromocytoma and Paraganglioma (PPGL)
      • Prostate
      • Rectum
      • Secondary NC
      • SKIN (MCC) Merkel Cell Carcinoma
      • Small Bowel
      • Stomach
      • Testicles
      • Thymus
      • Thyroid
    • Treatments
    • Living with Neuroendocrine Cancer
      • Diet & Nutrition
    • End of Life
  • Help and Support
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      • Join a Support Group
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    • Our Online Community
    • Financial Support
  • Research & Our Campaign Work
    • Research
      • Find a Clinical Trial
      • Research Information Hub
      • Funding Research
      • Research Papers from around the World
    • Neuroendocrine Cancer: An Ideal Patient Care Pathway
    • Advancing Neuroendocrine Cancer Research
      • Practice-changing Grants
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A Businessman’s Blog, By Alan

A Businessman’s Blog, By Alan

by Leanne Talbot | Nov 21, 2024 | Patient Stories, Patient Stories & Experiences

Primary Neuroendocrine Cancer Site: Pancreas NET Centre of Excellence: The Christie NHS Foundation Trust, Manchester – Living with Pancreatic Neuroendocrine Cancer I’m writing this in November 2024, and at this moment in time, I aim to find a way to live with my...
Taking Part in Research, by Leanne

Taking Part in Research, by Leanne

by Leanne Talbot | Aug 7, 2024 | Patient Stories, Patient Stories & Experiences

Name: Leanne Neuroendocrine Cancer Site: Primary tumour in my rectum and metastases in my liver and thyroid. Hospital: Newcastle Freeman Hospital –   Initial Diagnosis I was originally diagnosed in August 2019, with a primary tumour in my rectum and metastases...
PRRT, Two Years on, by Tricia

PRRT, Two Years on, by Tricia

by Leanne Talbot | Jul 25, 2024 | Patient Stories, Patient Stories & Experiences

Name: Tricia Hospital: The Royal Free –   When my Professor told me that he would be recommending PRRT (Peptide Receptor Radionuclide Therapy) as the next step in my treatment plan, I went straight to the ‘Natter’ support group for advice. These groups have...
Long Time Living with Lanreotide, by Carolyn

Long Time Living with Lanreotide, by Carolyn

by Leanne Talbot | Jul 18, 2024 | Patient Stories, Patient Stories & Experiences

Name: Carolyn Neuroendocrine Cancer Site: Bowel and secondary liver mets Hospital: Royal Free Hospital, and local. – Carolyn’s Story: Lanreotide. Love it or hate it, it’s been my friend and part of my life since 2011 when liver metastases showed up on a...
Neurodivergence and Neuroendocrine Cancer 

Neurodivergence and Neuroendocrine Cancer 

by Leanne Talbot | Jun 18, 2024 | Patient Stories, Patient Stories & Experiences

Neurodivergence is wider than autism, but this piece specifically refers to autism. – Autism is a spectrum disorder, so it is variable: no one with autism experiences being autistic in the same way, so although this is my experience, and there are...
From Frightened to Enlightened, By Lesley

From Frightened to Enlightened, By Lesley

by Leanne Talbot | Jun 6, 2024 | Patient Stories & Experiences

Name: Lesley  Neuroendocrine Cancer Site: Bowel, Liver Hospital: Royal Free  – My name is Lesley Porch and I currently work full-time as a secondary school support teacher and pastoral care supervisor. As far back as 1995, I can, unfortunately, recall feeling...
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Hero Awards 2025 Now Live!

Neuroendocrine Cancer UK are proud to announce that the Hero Awards are returning for their second year with the aim of recognising and celebrating the bravery and resilience of neuroendocrine cancer patients, the dedication and support of medical professionals, the love and encouragement from friends and family, and the extraordinary fundraising achievements that enable Neuroendocrine Cancer UK to continue its vital work.

Please CLICK HERE to visit our Hero Awards webpage for information on how to nominate your Neuroendocrine Cancer UK Hero!