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  • Neuroendocrine Cancer
    • Neuroendocrine Cancer UK Virtual Handbook
    • What Is Neuroendocrine Cancer?
      • Hormones
    • Just Diagnosed
    • Symptoms and Syndromes
    • Tests & Getting Results
    • Specialist Care & Centres of Excellence
    • Your Cancer Site
      • Adrenal
      • Appendix
      • Breast
      • Cancer of the Unknown Primary
      • Duodenal
      • Female Reproductive System
      • Goblet Cell
      • Large Bowel
      • Lung
      • Pancreas
      • Pheochromocytoma and Paraganglioma (PPGL)
      • Prostate
      • Rectum
      • Secondary NC
      • SKIN (MCC) Merkel Cell Carcinoma
      • Small Bowel
      • Stomach
      • Testicles
      • Thymus
      • Thyroid
    • Treatments
    • Living with Neuroendocrine Cancer
      • Diet & Nutrition
    • End of Life
  • Help and Support
    • Support Groups
      • Join a Support Group
    • Counselling and Mental Health
    • Patient Resources
    • Stories & Experiences
    • Events and Conferences
    • Webinars
    • Podcasts
    • Blogs
    • Our Online Community
    • Financial Support
  • Research & Our Campaign Work
    • Research
      • Find a Clinical Trial
      • Research Information Hub
      • Funding Research
      • Research Papers from around the World
    • Neuroendocrine Cancer: An Ideal Patient Care Pathway
    • Advancing Neuroendocrine Cancer Research
      • Practice-changing Grants
    • Spotlight on Neuroendocrine Cancer
    • Open Conversations
    • World Neuroendocrine Cancer Day
    • Neuroendocrine Life Alliance
  • Support Us & Get Involved
    • Donate
      • In Memory
    • Fundraise for us
      • Cakes for a Cause
      • Daily Dip 4 Dave
      • Raise funds online
    • Shop
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    • Leave a Gift in Your Will
    • Get Involved
      • Hero Awards
      • Have Your Say / Share Your Experience
  • News
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  • For Health Professionals
    • Practical Guides
    • Supporting your Patients
    • Neuroendocrine Cancer Patient Case Studies for Healthcare Professionals
    • Professional Development Courses
    • Neuroendocrine Cancer Guidelines
  • About Us
    • Our Ambassadors, Medical Advisory Board and Collaborators
    • Annual Accounts and Strategy
  • Contact Us
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From Diagnosis to Doing My Own Jab: My Lanreotide Learning Curve, Midge’s Story

From Diagnosis to Doing My Own Jab: My Lanreotide Learning Curve, Midge’s Story

by Leanne Talbot | Jul 9, 2025 | Patient Stories, Patient Stories & Experiences

Name: Midge Neuroendocrine Cancer Primary Site: Small Bowel Diagnosed: December 2023  Neuroendocrine Cancer Specialist Centre: Queen Elizabeth Hospital, Birmingham –  Midge’s Story  “Mr Jones, we think we can see something on your ultrasound. But it’s...
Learning to Breathe Again: Laura’s Neuroendocrine Cancer Diagnosis at 28

Learning to Breathe Again: Laura’s Neuroendocrine Cancer Diagnosis at 28

by Leanne Talbot | Jun 24, 2025 | Patient Stories, Patient Stories & Experiences

Name: Laura Lonergan   Neuroendocrine Cancer Site: Lung Neuroendocrine Cancer – Atypical Carcinoid (AC)   Diagnosis Date: March 2024  Neuroendocrine Cancer Specialist Hospital: The Christie NHS Foundation Trust   – Laura’s Story ‘I work for the...
Caring for a Loved One with Neuroendocrine Cancer, by Dave

Caring for a Loved One with Neuroendocrine Cancer, by Dave

by Leanne Talbot | Jun 12, 2025 | Patient Stories, Patient Stories & Experiences

Dave shares his powerful 20-year journey as a caregiver to his wife Deb, living with stage 4 neuroendocrine cancer. From misdiagnosis to expert care at The Christie, his story offers insight, advice, and hope for other families and caregivers. Name: Dave  Wife’s...
When Symptoms Speak Louder Than Scans, by Donna

When Symptoms Speak Louder Than Scans, by Donna

by Leanne Talbot | May 29, 2025 | Patient Stories, Patient Stories & Experiences

Name: Donna  Neuroendocrine Cancer Site(s): Likely small bowel, and possibly the pancreas  Diagnosed: December 2023  Neuroendocrine Cancer Hospital: Glasgow Royal Infirmary  – Donna’s Story: One of the hardest parts of my neuroendocrine cancer diagnosis...
A Chance Discovery, by Hayley

A Chance Discovery, by Hayley

by Leanne Talbot | May 15, 2025 | Patient Stories, Patient Stories & Experiences

Name: Hayley  Neuroendocrine Cancer Site: Lung (Typical Carcinoid)   Neuroendocrine Cancer Hospital: Oxford Churchill NET Centre of Excellence  Diagnosis: April 2024  – Hayley’s Story I was diagnosed in April 2024 with the rather vague description of ‘lung...
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Neuroendocrine Cancer UK is a UK wide charity solely dedicated to providing support and information to those affected by Neuroendocrine Cancer.

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Have you seen our latest webinar?

In this latest episode of our educational webinar series, Bill Harris and Elena Vrana, Medical Oncology, HPB & NET Department at The Christie NHS Foundation Trust explain clinical trials, their phases, and the importance of patient participation. They highlight online tools for trial recruitment, the role of patient advocates in trial design, and share a case study from the neuroendocrine clinic.

CLICK HERE to watch today!