by Leanne Talbot | Oct 15, 2026 | Patient Stories, Patient Stories & Experiences
Name: Katie Onset of illness: October 2015 Location of Primary: Pancreas Treatments prior to transplant: Distal pancreatectomy, liver ablation, liver wedge resection, Lanreotide injections, Everolimus, 4 treatment cycles of PRRT – – Katie’s...
by Leanne Talbot | Oct 7, 2026 | Patient Stories, Patient Stories & Experiences
Name: Alison Date of diagnosis: Autumn 2022 Primary Site: Small bowel Under the care of: The Royal Free London – Alison’s Liver Transplant Journey The first time a liver transplant was mentioned was when I initially met my consultant – shortly...
by Leanne Talbot | Oct 1, 2026 | Patient Stories, Patient Stories & Experiences
Name: Jon (also an Ambassador and Facilitator for the Bristol and Bath Patient Support Group) Primary NET: Small bowel Secondary NET: Liver Centre of Excellence: The Royal Free London Diagnosed: Age 33 Current age: 50 – – Jon’s Story One of our...
by Beth Chesser | Sep 29, 2026 | Patient Stories
I’m Julie, 54 and live in the Midlands. I was diagnosed with Multiple Endocrine Neoplasia Type 1 (MEN1 for short) which is a rare inherited genetic disorder which amongst other things, increases the risk of developing tumours – in essence it is a tumour...
by Leanne Talbot | Sep 22, 2026 | Patient Stories, Patient Stories & Experiences
– I am a Consultant Colorectal and Neuroendocrine Tumour Surgeon at the Royal Free Hospital in London. My surgical practice is fairly evenly divided between colorectal cancer and neuroendocrine tumours (NETs), and I perform around 30–40 NET resections each year....
