Supporting the

Neuroendocrine Cancer Community

Neuroendocrine Cancer UK – Who we are and what we do

Jul 23, 2021

It’s been a while since we gave an overview of who we are and what we do so we thought we would reintroduce ourselves.

We are Neuroendocrine Cancer UK – a UK wide registered charity solely dedicated to providing support and information to those affected by Neuroendocrine Cancer. We act as patient advocates, work with healthcare professionals and health policy makers, to promote access to the best care and treatments, increase awareness, encourage and support clinical research and ultimately aim to improve patient experience and outcomes.

From diagnosis, through treatment(s) and beyond, our team and services are here to offer expert-endorsed guidance, support, education, and information to anyone affected by Neuroendocrine Cancer.

Our services include:

• A dedicated freephone nurse helpline – 0800 434 6476

• Local and online NCUK Natter© support groups

Facebook groups for patients and supporters

• Patient education events

• A dedicated counselling service, free to patients and carers

• Campaigns providing a voice to the community – Faces of NCUK©, Voices of NCUK©, MIND the Gap©, FIND the Gap© and BRIDGING the Gap

• Advocacy – raising and supporting the community’s voice with policy and decision makers

• Provision of patient information resources on our website, to hospitals and cancer support organisations

• Research – we undertake in-house research as well as supporting external clinical trials.

Our central team consists of the following staff members:

Cathy Bouvier – Chief Executive Officer, INCA President

Nikie Jervis – Information and Support Nurse Specialist

Leanne Talbot – Operations & Communications Manager

Kate Quirk – Coordinator – Patient / Support Natters, Research Advocate – INCA

Beth Chesser – Administrator

Clare Gerrard – Marketing and Communications Officer (On maternity leave)

Famida Bishop – Administration Assistant (On maternity leave)

In addition on our central team, Professor Martyn Caplin is our Patron and we have a supportive team of Trustees, and Patient Ambassadors who work alongside us and help promote our work and undertake NCUK responsibilities for us. We are also supported by the counselling team at Rare Minds.

We have close relationships and work alongside various organisations and representatives such as AMEND, The Ann Edgar Charitable Trust, PLANETS Charity, UKINETs, INCA and Ronny Allan.

Our team and services are here to offer expert-endorsed guidance, support, education, and information to anyone affected by Neuroendocrine Cancer.

If we can help you in anyway, please get in touch.