Faces of NCUK
Be part of a like-minded community where you can share your own thoughts and feelings about Neuroendocrine Cancer.
Around 36,000 people are affected by Neuroendocrine Cancer in the UK, with over 5,000 people newly diagnosed each year. That is more than 13 people a day. For many the first time they will have heard about Neuroendocrine Cancer will be the day they receive their diagnosis.
Faces of NCUK is here for you to be part of a huge community of like minded people, and to share your own thoughts and feelings about Neuroendocrine Cancer. Whoever you are – a Neuroendocrine Cancer patient, a supporter, a friend, healthcare professional or a loved one – you have the power to take action and make your voice count.
By talking about your experiences, you can help us tell powerful stories that raise awareness and create a wider and deeper conversation about Neuroendocrine Cancer across the UK. People who’ve shared their story often find it a really positive experience and an opportunity to make a real difference for people living with Neuroendocrine Cancer, and their families.
Whether you are living with Neuroendocrine Cancer, or supporting a loved one who has been diagnosed, we’d love to hear from you.
How can you get involved?
All you need to do at this stage is click on the ‘Share your story’ button below and answer some questions, giving us as much information as you can and feel comfortable with. If we need more details, a member of the Stories team will get in touch to have a chat.
Thank you.
The stories here have been shared by Neuroendocrine Cancer patients, supporters, healthcare professionals and friends and colleagues of NCUK. We will constantly update this page, so please be sure to visit it again.
For some this has been the first time they have written about their experience and where they are now. Patients share their experiences of how they became ill, their treatment, and their road to recovery. Supporters and Healthcare professionals share their experiences. Please note that while most stories end on a positive note, others reveal insights into the very difficult roads that many Neuroendocrine Cancer patients face.
Please note that the stories and opinions posted in the Faces of NCUK are those solely of the authors and contributors of the stories. They do not reflect the opinions of Neuroendocrine Cancer UK.
Supporter, Lucy has written a song for her Dad.
A Chance Discovery, by Hayley
Name: Hayley Neuroendocrine Cancer Site: Lung (Typical Carcinoid) Neuroendocrine Cancer Hospital: Oxford Churchill NET Centre of Excellence Diagnosis: April 2024 - Hayley's Story I was...
Coping with Sc-Anxiety by Kate Quirk
One way or another, a cancer diagnosis is life changing. And when you are living with cancer, there will always be periods of time when your mind runs away with you, especially down the road of...
My Life with Low Grade Tumours, by Angela
Name: Angela Neuroendocrine Cancer Site: Ileum Hospital: Southampton Diagnosed: 2019 - Angela's Story Living with neuroendocrine tumours (NETS) is such a double-edged sword, isn’t it? ...
Rare, But Not Alone by Louise
Name: Louise Neuroendocrine Cancer Primary Site: Maxillary Sinus Diagnosed: January 2024 Hospital: Morriston Hospital, South Wales - Louise's Story - Diagnosis The 3rd of January 2024 is not a...
Coming to Terms with Tumours, by Angela
Name: Angela Neuroendocrine Cancer Primary Site: Ileum Specialist Centre: Southampton Diagnosed: 2019 - Angela's Story - To Work or Not to Work? That is the question. Coming to terms with NETS ...
Type 3C Diabetes and Blood Sugar Issues, by Jane
Name: Jane Neuroendocrine Cancer Primary Site: Pancreas Centre of Excellence: Royal Free, London Diagnosed: 2016 - Jane's Story My Diagnosis I read about a lot of neuroendocrine cancer patients...
28 Years on, by Chrissie
Name: Chrissie Neuroendocrine Cancer Primary Site: Pancreas Neuroendocrine Cancer Centre of Excellence: The Royal Free London Diagnosis: December 1997 - Chrissie's Story I am in my twenty-eighth...
Living with Neuroendocrine Cancer – 10 Years and Counting, by Maxine
Name: Maxine Neuroendocrine Cancer Site: Primary site: Small Bowel Centre of Excellence: Newcastle Freeman Diagnosed: 2015 - Maxine's Story I was diagnosed in November 2015 - and operated on in...
Living with Neuroendocrine Cancer, Kath’s Story
Name: Kath Neuroendocrine Cancer Primary Site: Small Bowel Centre of Excellence: The Christie Manchester Diagnosed: 2015 - Kath's Story Living with Long-Term Uncertainty The longer we can live with...
Type 3 Gastric Neuroendocrine Cancer – Tim’s Story
Name: Tim Neuroendocrine Cancer Primary Site: Stomach - Type 3 Centre of Excellence: Kings College London Date of Diagnosis: September 2024 - Tim's Story: An Unexpected Start My NET journey started,...
An Unexpected Diagnosis: Davinya’s Story
Name: Davinya Neuroendocrine Cancer Primary Site: Small Bowel and Lung Hospital: The Christie NHS Foundation Trust - Davinya's Story The Unexpected Discovery My neuroendocrine cancer story started...
Melanie’s Lung Neuroendocrine Cancer Story
Name: Melanie Neuroendocrine Cancer Site: Lung NETS (also known as Typical Carcinoid Lung) Hospital: Diagnosed at St George’s University Hospital London* Date Diagnosed: March 2020 - The...