Supporting the

Neuroendocrine Cancer Community

Faces of NCUK

Be part of a like-minded community where you can share your own thoughts and feelings about Neuroendocrine Cancer.

Around 36,000 people are affected by Neuroendocrine Cancer in the UK, with over 5,000 people newly diagnosed each year. That is more than 13 people a day. For many the first time they will have heard about Neuroendocrine Cancer will be the day they receive their diagnosis.

Faces of NCUK is here for you to be part of a huge community of like minded people, and to share your own thoughts and feelings about Neuroendocrine Cancer. Whoever you are – a Neuroendocrine Cancer patient, a supporter, a friend, healthcare professional or a loved one – you have the power to take action and make your voice count.

 

By talking about your experiences, you can help us tell powerful stories that raise awareness and create a wider and deeper conversation about Neuroendocrine Cancer across the UK. People who’ve shared their story often find it a really positive experience and an opportunity to make a real difference for people living with Neuroendocrine Cancer, and their families.

Whether you are living with Neuroendocrine Cancer, or supporting a loved one who has been diagnosed, we’d love to hear from you.

How can you get involved?

All you need to do at this stage is click on the ‘Share your story’ button below and answer some questions, giving us as much information as you can and feel comfortable with. If we need more details, a member of the Stories team will get in touch to have a chat. 

Thank you.

 

The stories here have been shared by Neuroendocrine Cancer patients, supporters, healthcare professionals and friends and colleagues of NCUK. We will constantly update this page, so please be sure to visit it again. 

For some this has been the first time they have written about their experience and where they are now. Patients share their experiences of how they became ill, their treatment, and their road to recovery. Supporters and Healthcare professionals share their experiences. Please note that while most stories end on a positive note, others reveal insights into the very difficult roads that many Neuroendocrine Cancer patients face.

Please note that the stories and opinions posted in the Faces of NCUK are those solely of the authors and contributors of the stories. They do not reflect the opinions of Neuroendocrine Cancer UK.

Supporter, Lucy has written a song for her Dad.

PRRT Funding: Michelle’s Story

PRRT Funding: Michelle’s Story

Name: Michelle Neuroendocrine Cancer Site: Primary: Adrenal gland with secondaries in lungs, liver, and lymph nodes behind the aorta - - Michelle's Story I have suffered for years with sweating,...

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Newly Diagnosed, by Marie

Newly Diagnosed, by Marie

Name: Marie Martin Neuroendocrine Cancer Site: Pancreatic Primary - I’d rather not be writing this story but it might help others - it's hard to find out anything straightforward about...

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My ‘Friend’, CAPTEM

My ‘Friend’, CAPTEM

Written by Cynthia, neuroendocrine cancer patient. Neuroendocrine cancer site: Pancreas. Hospital: The Christie, Manchester.   In June 2021, I was diagnosed with an 11cm tumour on the tail of...

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This is my husband, Andrew Cheetham 

This is my husband, Andrew Cheetham 

In memory of Andrew, written by his wife, Faye. - - I had known Andrew throughout my teenage years, he was very popular, especially with the girls. I knew him from afar, I was shy and quiet and...

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Decisions on Treatment Options, by Jane

Decisions on Treatment Options, by Jane

  Name: Jane Since my diagnosis seven years ago, after a long search for the reason for my pain, I have become a faithful diary writer, everything from what I eat - to see if it gives me an...

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