Supporting the

Neuroendocrine Cancer Community

Faces of NCUK

Be part of a like-minded community where you can share your own thoughts and feelings about Neuroendocrine Cancer.

Around 36,000 people are affected by Neuroendocrine Cancer (NETs) in the UK, with over 5,000 people newly diagnosed each year. That is more than 13 people a day. For many the first time they will have heard about Neuroendocrine Cancer will be the day they receive their diagnosis.

Faces of NCUK is here for you to be part of a huge community of like minded people, and to share your own thoughts and feelings about Neuroendocrine Cancer. Whoever you are – a Neuroendocrine Cancer patient, a supporter, a friend, healthcare professional or a loved one – you have the power to take action and make your voice count.

 

By talking about your experiences, you can help us tell powerful stories that raise awareness and create a wider and deeper conversation about Neuroendocrine Cancer across the UK. People who’ve shared their story often find it a really positive experience and an opportunity to make a real difference for people living with Neuroendocrine Cancer, and their families.

Whether you are living with Neuroendocrine Cancer, or supporting a loved one who has been diagnosed, we’d love to hear from you.

How can you get involved?

All you need to do at this stage is click on the ‘Share your story’ button below and answer some questions, giving us as much information as you can and feel comfortable with. If we need more details, a member of the Stories team will get in touch to have a chat. 

Thank you.

 

The stories here have been shared by Neuroendocrine Cancer patients, supporters, healthcare professionals and friends and colleagues of NCUK. We will constantly update this page, so please be sure to visit it again. 

For some this has been the first time they have written about their experience and where they are now. Patients share their experiences of how they became ill, their treatment, and their road to recovery. Supporters and Healthcare professionals share their experiences. Some stories end on a positive note, but some paint a picture of the difficult road that many Neuroendocrine Cancer patients face.

Please note that the stories and opinions posted in the Faces of NCUK are those solely of the authors and contributors of the stories. They do not reflect the opinions of Neuroendocrine Cancer UK.

Supporter, Lucy has written a song for her Dad.

Marion, NCUK Trustee

Marion, NCUK Trustee

I became a Trustee of the then NET Patient Foundation (now Neuroendocrine Cancer UK) in 2012 because I was keen to support this charity which was a great help to me following my diagnosis of a...

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Peter, NCUK Trustee

Peter, NCUK Trustee

Peter helped found the patient support group, ‘Living with Carcinoid’, with his late wife Liddy in 2000. Liddy (Oldroyd) was an outgoing and successful TV comedy director and was eventually...

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Martin, Patient

Martin, Patient

  Hello, my name is Martin Brown, I am 55 years old, married to Wendy and we have 2 daughters, Emma (27) and Lauren (25), and a blind old Jack Russell, Stella, and Reggie the cat. In January...

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Sally, Patient

Sally, Patient

My name is Sally Jenkins and I am a retired computer systems analyst and lecturer living in South Wales. I was diagnosed with metastatic small bowel NETS in 2009 after life-saving emergency surgery...

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Raj, Gastroenterologist & Trustee

Raj, Gastroenterologist & Trustee

I am Dr. Raj Srirajaskanthan, I work as a gastroenterologist and have a specialist interest in Neuroendocrine cancers. I work in London and have been a Trustee of the NCUK for the last 3 years. Also...

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Mark, Patient

Mark, Patient

It was just before Christmas 2017 when I quickly opened the post (on my own, standing in the kitchen) when I realised the words I was reading were telling me I had cancer – surely this can’t be...

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Lucy, Supporter

Lucy, Supporter

NCUK have invited me and my lovely Dad to share our story of his battle with this awful disease over the last 2 years, as part of their campaign: Faces of NCUK. So here we go I guess… March 19th...

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Ruth, Patient

Ruth, Patient

Thanks for the invitation to tell about myself for the « Faces of NCUK «  campaign. I am a patient (diagnosed with primary tumour in the ileum and mets in the mesentery and nearby lymph nodes...

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Ros, Patient & NCUK Trustee

Ros, Patient & NCUK Trustee

At the time of my diagnosis almost 10 years ago, I was a busy solicitor working full time and commuting between my home in Newbury and my firm’s offices in London and Swindon. It was an immense...

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Richard, Patient

Richard, Patient

Hi my name is Richard. I have 4 kids and live in Essex. Five years ago I was diagnosed with a gastric neuroendocrine tumour at the age 31. With no obvious symptoms, this emotional roller coaster...

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Angie – CNS, Newcastle

Angie – CNS, Newcastle

Hi my name is Angie and 14 years ago my mam was diagnosed with a neuroendocrine tumour (NET) and the only change was a loss of 4lbs in weight but I knew there was something wrong. The GP examined...

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About Us

Neuroendocrine Cancer UK is a UK wide charity solely dedicated to providing support and information to those affected by Neuroendocrine Cancer.

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