Supporting the

Neuroendocrine Cancer Community

Welcome our new Trustee, retired GP David

Welcome our new Trustee, retired GP David

We are delighted to announce the appointment of our new Trustee, David David is a semi-retired GP and received a diagnosis of Neuroendocrine Cancer in 2016. In his video here, he talks about the symptoms he experienced over a 13-year period before an official...
Neuroendocrine Cancer Facebook Support Groups

Neuroendocrine Cancer Facebook Support Groups

Our Facebook groups are private groups and have been established to provide a safe place for those affected by Neuroendocrine Cancer to chat, talk and help each other by sharing experiences and knowledge, to both give and receive advice, support and friendship.   *NEW...
NEW PODCAST!! Mental Health Awareness Week

NEW PODCAST!! Mental Health Awareness Week

In light of the recent Mental Health Awareness Week, we have recorded a special episode with Kym Winters, founder and Director of Rare Minds about some of the emotional challenges those diagnosed and living with Neuroendocrine Cancer face.   Kym also shares her...
Carcinoid Heart Disease : The Heart of The Matter

Carcinoid Heart Disease : The Heart of The Matter

Carcinoid Heart Disease (CHD or Hedinger syndrome), is a rare condition that affects about one in five (20%) patients who have a Neuroendocrine Cancer AND Carcinoid Syndrome (CS). The precise cause is unknown but is thought to be related to abnormally raised levels of...