by Clare Gerrard | Aug 23, 2023
In a candid and inspiring update, Simon Walsh, a Neuroendocrine Cancer UK Ambassador, reflects on his pathway since his decision to retire early due to an unexpected cancer diagnosis. Simon, who was diagnosed with cancer two and a half years ago, questions the concept...
by Clare Gerrard | Jun 27, 2023
We are pleased to highlight a remarkable patient story that embodies resilience and optimism in the face of a challenging diagnosis. Debra, a Neuroendocrine Cancer patient, shares her journey and experiences through a heartfelt blog, offering hope and support to...
by Clare Gerrard | May 9, 2023
Neuroendocrine cancers (NC) are England’s tenth most prevalent cancer. Yet awareness of these cancers is very low, even among healthcare professionals (HCPs). People living with NC experience inequities in diagnosis, disease management and care due to a lack of...
by Clare Gerrard | Apr 26, 2023
Rare : not widely known; not frequently used or experienced; uncommon or unusual. “The mantra of ‘hear hooves, think horse not zebra’ is greatly contributing to diagnostic delays and poor patient experience” says Dr Lucy McKay, founder of Medics4RareDiseases. “The...
by Leanne Talbot | Dec 19, 2022
We are delighted to announce the appointment of our new Trustee, David David is a semi-retired GP and received a diagnosis of Neuroendocrine Cancer in 2016. In his video here, he talks about the symptoms he experienced over a 13-year period before an official...
