PERT Shortages Survey

PERT Shortages Survey

We know how stressful the ongoing PERT shortages are for those affected by neuroendocrine cancer (NET & NEC), pancreatic cancer (PDAC), pancreatitis, and cystic fibrosis. As charities, we are committed to monitoring the situation and sustaining pressure for this...
PERT Update April 2025

PERT Update April 2025

PERT Update April 2025: Our PERT charities collaborative* continues to work with all stakeholders to improve supply and access to Pancreatic Enzyme Replacement Therapy (eg Creon, Nutrizym & Pancrex) A recent response to our joint letter to the Prime Minister, from...
Pancreatic Neuroendocrine Cancer

Pancreatic Neuroendocrine Cancer

“Being diagnosed with any cancer is devastating enough, but it is vitally important to understand not just the site but the type, as this can lead you down a very different path. By understanding that variance it ensured that I had access to, and was reviewed by a...

Please note: In July - the Helpline will be closed on the following dates:

Wed 16th July

Tues 29th July

Wed 30th July (from 1pm)

There are no current closures scheduled for August.

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