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URGENT ACTION NEEDED – CHANGES TO PIP PROPOSED

URGENT ACTION NEEDED – CHANGES TO PIP PROPOSED

by | Jun 30, 2025

URGENT ACTION NEEDED  The impact of cancer is far more than medical. With it, comes a hidden and often devastating financial burden that many do not see or expect: the ripple effect extending to family members and carers. From travelling to receive the right treatment...
PERT Shortages Survey

PERT Shortages Survey

by | Jun 24, 2025

We know how stressful the ongoing PERT shortages are for those affected by neuroendocrine cancer (NET & NEC), pancreatic cancer (PDAC), pancreatitis, and cystic fibrosis. As charities, we are committed to monitoring the situation and sustaining pressure for this...
Advocacy & Policy Updates

Advocacy & Policy Updates

by | Apr 15, 2025

Advocacy & Policy Neuroendocrine Cancer UK was founded with the vision of providing support, raising awareness, and driving research for those affected by neuroendocrine cancer. What started as a small community initiative has now grown into a leading charity that...
PERT Update April 2025

PERT Update April 2025

by | Apr 15, 2025

PERT Update April 2025: Our PERT charities collaborative* continues to work with all stakeholders to improve supply and access to Pancreatic Enzyme Replacement Therapy (eg Creon, Nutrizym & Pancrex) A recent response to our joint letter to the Prime Minister, from...