**NEW EPISODE!**
EP.14: Rambles with Sally – Perfect Moments
Insights from NCUK Ambassador, Sally on living with Neuroendocrine Cancer.
This episode, Sally talks about appreciating the perfect moments, whilst living with Neuroendocrine Cancer.
Further support:
EP.13: Rambles with Sally – Sleep & Neuroendocrine Cancer
Insights from NCUK Ambassador, Sally on living with Neuroendocrine Cancer.
In this episode NCUK Ambassador, Sally discusses useful tips for better sleep with fellow patient, Phil.
Further support – https://www.neuroendocrinecancer.org.uk/neuroendocrine-cancer/living-with-neuroendocrine-cancer/sleep/
EP.12: MDT Approach to Neuroendocrine Cancer – A chat with Dr Debashis Sarker, Consultant Medical Oncologist at King’s College Hospital, London
In this episode of Not Just NE Cancer, Cathy speaks to Dr Debashis Sarker, Consultant Medical Oncologist at King’s College Hospital, London. Topics include:
- How did you get involved in the neuroendocrine world?
- What is the role of the oncologist within the MDT?
- What are the main influences in your decision to suggest a treatment?
- What do you see as the main challenges we still face in the neuroendocrine cancer world in terms of treatments?
- Thoughts around immunotherapy and the future of genomics in planning treatments and predicting outcomes.
EP.11: Neuroendocrine Cancer – Mental Health Awareness Week
In this episode of Not Just NE Cancer, Cathy speaks to Kym Winters, founder and Director of Rare Minds about some of the emotional challenges those diagnosed and living with Neuroendocrine Cancer face.
Kym also shares her experience of rare disease and the work of Rare Minds.
- Rare Minds
- NCUK Counselling Service
- Supporting you
- Just Diagnosed
- Living with Neuroendocrine Cancer
- NCUK’s MIND the Gap Campaign
EP.10: Neuroendocrine Cancer Treatments – The patient experience
In this episode of Not Just NE Cancer, Cathy speaks to NCUK Ambassadors, Maxine and Simon all about treatments after their Neuroendocrine Cancer diagnosis.
Click here to read all about treatments on the NCUK website
EP.9: MDT Approach to Neuroendocrine Cancer – A chat with Mr Andreas Prachalias, Liver Transplant & Hepatobiliary Surgeon at King’s College Hospital, London
In this episode, Cathy speaks to Liver Transplant & Hepatobiliary Surgeon, Mr Andreas Prachalias from King’s College Hospital, London. Topics include:
- What is the role of the surgeon within an expert MDT?
- If technically possible, what influences your decision to support surgical intervention?
- What would influence you in reviewing a case for surgery when initially not a possibility?
- When does impossible become a permanent decision?
- Managing quality of life is of paramount importance, how do you manage expectations around the consequences of surgery?
- Where does liver transplantation fit into the treatment spectrum for our community?
- What is the sequence of surgical treatments when patients need liver surgery and heart surgery for carcinoid heart disease?
EP.8: Carcinoid Heart Disease
In this episode of Not Just NE Cancer, Cathy travels to the Queen Elizabeth Hospital, Birmingham to speak to Cardiac Consultant, Professor Steeds, about Carcinoid Heart Disease.
Find out more:
- Carcinoid Heart Disease
- Just diagnosed
- Carcinoid syndrome
- Types of tests
- Emotional support
- Carcinoid crisis
EP. 7: Multiple Endocrine Neoplasia Disorders
In this episode of Not Just NE Cancer, Cathy speaks Jo Grey, CEO of AMEND (The Association for Multiple Endocrine Neoplasia Disorders) about her personal story, the work of AMEND and genetic Neuroendocrine tumours.
AMEND – https://www.amend.org.uk/
EP. 6: MDT Approach to Neuroendocrine Cancer – A chat with Dr Claudia Mestre, Consultant Histopathologist at King’s College Hospital in London
In this episode of Not Just NE Cancer, Cathy speaks to Consultant Histopathologist, Dr Claudia Mestre at King’s Hospital in London. Topics include:
- What is a histopathologist?
- How did you get involved in the neuroendocrine world?
- What is your role within the MDT?
- Are there any key differences in the tissue from neuroendocrine cancers and other more common cancers?
- Has the WHO re classification impacted the way you review the tissue you receive?
- How do you feel about patients having more ownership of their tissues/samples?
- Advances in genomics are shaping the field of histopathology in a number of ways – what changes do you see in the neuroendocrine field around genomics and better prediction of outcomes?
EP. 5: MDT Approach to Neuroendocrine Cancer – A chat with Dr Raj Srirajaskanthan, Consultant Gastroenterologist at King’s College Hospital, London
In this episode of Not Just NE Cancer, Cathy speaks to Consultant Gastroenterologist, Dr Raj Srirajaskanthan at King’s College Hospital in London.
– Working with your healthcare team
– Useful questions for your appointments
– Getting the right care
EP. 4: Rambles with Sally – Sherry talks PRRT
Insights from NCUK Ambassador, Sally on living with Neuroendocrine Cancer.
Sally talks to Neuroendocrine Cancer patient, Sherry about her experience of receiving treatment, Radioligand Therapy (PRRT).
Further support:
EP. 3: Rambles with Sally – Advice with Kath
Insights from NCUK Ambassador, Sally on living with Neuroendocrine Cancer.
EP.2: Symptoms prior to diagnosis – Debra and Michelle
NCUK CEO, Catherine Bouvier speaks to Debra and Michelle about their symptoms prior to diagnosis with Neuroendocrine Cancer.
Further information:
– Lung Neuroendocrine Cancer Primary
– Rectal Neuroendocrine Cancer Primary
– Barrier to Diagnosis Report
– Symptoms & Awareness Postcard – Order here
EP.1: Symptoms prior to diagnosis – Maxine & Simon, NCUK Ambassadors
NCUK CEO, Catherine Bouvier speaks to Ambassadors, Maxine and Simon about their symptoms prior to diagnosis with Neuroendocrine Cancer.
Further information:
– MEN1
– Small Bowel
– Barrier to Diagnosis Report
– Symptoms & Awareness Postcard – Order here