Update on the Timms Review of PIP (Interim Report published) – Key Points
As many of you will recall, a proposal to review Personal Independence Payment (PIP) formed part of the UK Government’s plans last year (NCUK News Item, June 2025). Thanks to sustained campaigning by individuals and charities — including our own submission alongside...
Neuroendocrine Tumours (NENs): New Treatments, Daraxonrasib & Why Genomic Testing Matters
What are NENs? Neuroendocrine neoplasms (NENs) are cancers that start in hormone‑producing (neuroendocrine) cells: there are 2 key classifications based on differentiation (how cells look and behave): Neuroendocrine Tumours are well-differentiated with a slow to...
PERT Shortages Survey
We know how stressful the ongoing PERT shortages are for those affected by neuroendocrine cancer (NET & NEC), pancreatic cancer (PDAC), pancreatitis, and cystic fibrosis. As charities, we are committed to monitoring the situation and sustaining pressure for this...