AMEND CEO, Jo Grey, has been elected as one of 3 co-chairs of the Patient Advisory Group (PAGs) Committee of the European Society for Endocrinology (ESE). Jo joins fellow co-chairs, Johan De Graaf (Chair of the Dutch Pituitary Foundation), and Peter Lakwijk (Treasurer...
🎧 Welcome to this month’s ‘Not Just NE Cancer’ series podcast! Real life experiences, practical advice and everything in between. Whether you are diagnosed with Neuroendocrine Cancer or another rare or less common cancer, our podcast series cover topics from initial...
Pheochromocytoma and Paraganglioma (PPGL) is associated with Neuroendocrine Tumours of the adrenal glands (Pheochromocytoma) and / or paraganglia (Paraganglioma). The central part of an adrenal gland, the medulla, is responsible for producing catecholamines which are...
September is Thyroid Cancer Awareness Month. Medullary Thyroid Cancer (MTC) is a rare neuroendocrine cancer that accounts for about 7 in 100 cases of thyroid cancer. In 25% of MTC – it can occur as part of rare inherited (genetic) disorders called MEN2 or...