PERT Update April 2025

PERT Update April 2025

PERT Update April 2025: Our PERT charities collaborative* continues to work with all stakeholders to improve supply and access to Pancreatic Enzyme Replacement Therapy (eg Creon, Nutrizym & Pancrex) A recent response to our joint letter to the Prime Minister, from...
NICE user involvement: NICE Prioritisation Board

NICE user involvement: NICE Prioritisation Board

The National Institute for Health and Care Excellence (NICE) set up the NICE Prioritisation Board to help decide topics for guidance development see more information. NICE are looking for two people to join the board to bring a perspective of patients, people who use...
Neuroendocrine Cancer UK Hero Awards Winners!

Neuroendocrine Cancer UK Hero Awards Winners!

Neuroendocrine Cancer UK proudly launched the Neuroendocrine Cancer UK Hero Awards in September 2024, an initiative designed to honour the courage and resilience of neuroendocrine cancer patients, the unwavering dedication of medical professionals, the steadfast...