by Clare Gerrard | Jul 15, 2025
Get Data Out We are delighted to announce that we are working, alongside neuroendocrine cancer expert clinicians, with the National Disease Registration Service (NDRS) Get Data Out programme team, to add neuroendocrine cancers to the list of cancers the NDRS...
by Clare Gerrard | Jul 8, 2025
Update 11th July 2025 Delighted to see Dr Scott Arthur’s Rare Cancers Bill pass through third reading in the House of Commons on Friday. This Bill is a crucial step forward for those living with rare and less common cancers. Thank You to everyone who contacted...
by Clare Gerrard | May 13, 2025
Why Self-Advocacy Matters in a Neuroendocrine Cancer Diagnosis When you hear the words “you have cancer,” it can feel like the ground disappears beneath your feet. Everything becomes overwhelming, especially when the diagnosis is something as complex and unfamiliar as...
by Clare Gerrard | Feb 4, 2025
February is always an important month for Neuroendocrine Cancer UK. It is the month of World Cancer Day and Rare Disease Day which gives us the perfect opportunity to talk about the unmet needs of this misunderstood cancer. World Cancer Day is a poignant reminder of...
by Clare Gerrard | Aug 13, 2024
Healthcare Professional Webinars: PERT and what to do during current shortages (Please note: that these webinars are specifically for healthcare professionals: including hospital clinicians/prescribers, GPs, CNSs & both hospital and community pharmacists) Many of...
