Mental health support must be an integral part of rare disease care. Today, Rare Disease Day 2023, Rareminds have launched their Rare Minds Matter campaign and are asking members of the rare disease community to fill out their mental health survey. They want to hear...
An Approach to Rare Diseases in Primary Care including discussion on Neuroendocrine Cancer, Primary Care Knowledge Boosts Podcast We are delighted that one of our Trustees and retired GP David Bartlett was part of the Primary Care ‘Knowledge Boosts...
PODCAST – Rambles With Sally – Episode 2. In this episode Sally, Neuroendocrine Cancer patient, talks to us about Heat Therapy. Thank you Sally for taking the time to record this podcast and for sharing your advice and experience. You can listen to...
Genomics : PART ONE : 100,000 Genomes Project – and beyond! In late 2012, the then Prime Minister, David Cameron, announced the 100,000 Genomes Project. Its four main aims were; to enable new scientific discovery and medical insights to bring benefit to...
