Supporting the

Neuroendocrine Cancer Community

Are Neuroendocrine Cancers Rare?

Are Neuroendocrine Cancers Rare?

Today is Rare Disease Day. Assumed rare, Neuroendocrine Cancer is now England’s 10th most prevalent Cancer, with a continually rising incidence – that has already seen a 371% increase since 1995.   Neuroendocrine Cancer UK’s Catherine Bouvier cuts through...
Why do we have a Moth on our logo?

Why do we have a Moth on our logo?

In medicine, the term “zebra” is used in reference to a rare disease or condition. “If you hear hooves, you assume horse.” The rare disease community wants you to consider zebra. We agree with and advocate this message. However due to the rise in incidence of...
Thyroid Cancer

Thyroid Cancer

September is Thyroid Cancer Awareness Month.   Medullary Thyroid Cancer (MTC) is a rare neuroendocrine cancer that accounts for about 7 in 100 cases of thyroid cancer.   In 25% of MTC – it can occur as part of rare inherited (genetic) disorders called MEN2 or...