PERT Update April 2025

PERT Update April 2025

PERT Update April 2025: Our PERT charities collaborative* continues to work with all stakeholders to improve supply and access to Pancreatic Enzyme Replacement Therapy (eg Creon, Nutrizym & Pancrex) A recent response to our joint letter to the Prime Minister, from...
The Big Cancer52 Conversation

The Big Cancer52 Conversation

The Big Cancer52 Conversation on Wednesday 14th June brought together leaders from the charity, healthcare and pharmaceutical sectors, to share best practices, exchange ideas and explore collaborations, with the ultimate aim of improving outcomes for people with rare...