News
The latest Neuroendocrine Cancer news and updates.
If you have any news you’d like to share with us – whether it’s about a fundraiser you’re organising or Neuroendocrine Cancer in the news, please let us know by emailing us.
Hero Awards 2025 – Now Live!
The Hero Awards are returning for their second year with the aim of recognising and celebrating...
‘SCAN’ Survey 2025 – One voice matters, thousands create change. Help improve care for NET patients!
The Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Cancer Patients...
INCA Advocacy with Catherine Bouvier
Cathy facilitated a discussion with members of the INCA community from Australia, Africa, USA,...
James Lind Alliance (JLA) Priority Setting Partnership (PSP) in Neuroendocrine Cancer
We are delighted to announce the launch of a James Lind Alliance (JLA) Priority Setting...
Upcoming Nurse Webinar – 17th September 8am
Calling All Nurses: Join the Will Norman Nurse Webinar on Neuroendocrine Cancer Join us on 17th...
Neuroendocrine Cancer UK Working with National Disease Registration Service – Get Data Out
Get Data Out We are delighted to announce that we are working, alongside neuroendocrine cancer...
Mounjaro® (Tirzepatide) & Neuroendocrine Cancers
We have had a number of enquiries about the use of Mounjaro® (Tirzepatide) and similar medications...
URGENT UPDATE 9TH JULY – Rare Cancers Bill
Update 11th July 2025 Delighted to see Dr Scott Arthur's Rare Cancers Bill pass through third...
URGENT ACTION NEEDED – CHANGES TO PIP PROPOSED
URGENT ACTION NEEDED The impact of cancer is far more than medical. With it, comes a hidden and...
PERT Shortages Survey
We know how stressful the ongoing PERT shortages are for those affected by neuroendocrine cancer...
Breakthrough Research Paves Way for Personalised Treatment in Lung Neuroendocrine Cancer
Innovative Research Fuels Hope for Personalised Lung Neuroendocrine Cancer Care In a major...
Neuroendocrine Cancer in the Daily Express – ‘I had no idea I was dying – and then I found out on the NHS app’
We are delighted to support the Daily Express Cancer Care campaign ensuring that all cancer...
Neuroendocrine Cancer – The Expert Patient: Podcast on neuroendocrine cancer to raise awareness among GPs
As part of our ‘spotlight on neuroendocrine cancer’ campaign which aims to raise awareness of...
Launching the Neuroendocrine Life Alliance
Neuroendocrine Cancer UK and the Association for Multiple Endocrine Neoplasia Disorders (AMEND)...
The First-Ever World Hormone Day – Today, 24th April 2025
24 April 2025 – The first World Hormone Day takes place today to raise awareness of the vital role...
Advocacy & Policy Updates
Advocacy & Policy Neuroendocrine Cancer UK was founded with the vision of providing support,...
PERT Update April 2025
PERT Update April 2025: Our PERT charities collaborative* continues to work with all stakeholders...
Neuroendocrine Cancer in the Daily Express News – The importance of access to mental health support for cancer patients
Feature photo credit: Neil Dickson | Trigger Warning - Some readers may find the following account...
Selective internal radiation therapy (SIRT) Update
Following on from our earlier News Item - and given the degree of interest this topic has...
Mental Health and Neuroendocrine Cancer in the News – Daily Express
We are delighted to support the Daily Express Cancer Care campaign ensuring that all cancer...
SIRT News
Preliminary Policy Proposal (PPP) takes next step towards improving access to SIRT The SIRT...
Hospital Outreach
Can you help us with reaching out to hospitals? With your help we will be able to highlight the...
Rethinking the “Rare”: new paper calls for greater awareness among healthcare professionals
Neuroendocrine Cancer UK are delighted that our article. ‘Are NENs no longer a rare cancer?’ has...
ENETS attendance and Helpline hours
Helpline closure: Wednesday 5th March 1-4pm and Thursday 6th March 10am – 4pm As some of our team...
Private Members Bill on Rare Cancer – please write to your MP
Dr Scott Arthur MP (Lab, Edinburgh SW) has introduced a Private Members Bill on Rare Cancers that...
Not Just NE Cancer podcast – New episode release
If you've been following the Not Just NE Cancer podcast series, you'll know that our host, Cathy...
Improving cancer pathways: Challenges, Overcoming Barriers and Digital Solutions
A recently published report from Public Policy Projects (PPP) and Civica recommends accelerating...
National Cancer Plan England 2025 – Consultation Open
National Cancer Plan England 2025 – Consultation Open Last year, Lord Darzi’s independent...
NICE user involvement: NICE Prioritisation Board
The National Institute for Health and Care Excellence (NICE) set up the NICE Prioritisation Board...
February 2025 Webinar Recording: ‘Translating Terminology within Neuroendocrine Cancer Care’
In this educational webinar, recorded in February 2025 and presented by Nikie Jervis, Director of...